
Adam
@ABrokenBattery • 8,246 subscribers
Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
Videos

"Covid has just ruined my life and the lives of so many other children" Samir, 16, has seen little improvement 5 yrs after developing #LongCovid. He is still disabled, housebound, and wheelchair-bound. The only medical help has been private because there was nothing on the NHS.
Adam34,026 Aufrufe • vor 28 Tagen

12-yr-old Aveline loved trapeze & sports until #LongCovid changed everything. “Within a day my entire life was flipped around… it’s been a constant battle against my own body.” “It’s really isolating. All my friends go to school together and I would give anything to be there.”
Adam84,201 Aufrufe • vor 5 Monaten

BBC Morning Live covered the new £4.75m UK government funded #MEcfs DNA study yesterday, which will sequence 6,000 samples as part of the wider DecodeME project. Unfortunately Dr Oscar Duke said Chronic Fatigue Syndrome is “probably the best way to describe” the illness.
Adam36,016 Aufrufe • vor 3 Monaten

“He was a doctor who ran marathons. Now, walking to the bathroom is harder than any marathon he ever ran. In this grade of severity ME is only invisible if people purposefully look away.” Evelien van den Brink calling for biomedical #MECFS research in European Parliament in 2019
Adam19,084 Aufrufe • vor 1 Monat

New Video: George Monbiot describes the treatment of #MECFS as "The Greatest Medical Scandal of the 21st century". Watch the introduction to a new 27 minute explainer video about the scandal from reframing a recognised neurological illness to the withdrawal of harmful treatments.
Adam110,979 Aufrufe • vor 1 Jahr

BBC Morning Live addresses complaints after Dr Oscar Duke said that Chronic Fatigue Syndrome was “probably the best way to describe” the illness. Feedback from viewers outlines how it trivialises the illness, is just one symptom, and it does not reflect the reality of #MECFS.
Adam22,295 Aufrufe • vor 2 Monaten