Adam

@ABrokenBattery • 8,406 subscribers

Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.

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Adam

Videos

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“I was a bit worried for her. I was thinking, how is she going to feel after that?” Dr Amir Khan talking about Miranda Hart’s appearance on Celebrity Traitors and how even small amounts of exertion can make her symptoms worse.

TW: Assisted suicide “She did not want to die. She wanted to live. Just not like this.” Report on the devastating impact of severe #MECFS and how more and more people with severe ME are choosing assisted suicide in Germany.

“I’ve gone from training five hours a day to being bedbound 22 and a half hours a day.” Former GB sprinter Beth Dobbin describes how #ME has changed her life. #MECFS

"For years and years I've been passed from doctor to doctor with me saying I'm so fatigued I've got all this pain... and noone could give me any answers." Miranda Hart talking about her diagnosis of ME caused by Lyme Disease on the Graham Norton show. #MECFS

12-yr-old Aveline loved trapeze &amp; sports until #LongCovid changed everything. “Within a day my entire life was flipped around… it’s been a constant battle against my own body.” “It’s really isolating. All my friends go to school together and I would give anything to be there.”

TW: Jon Stewart recently joked about hantavirus coverage and said: “this virus can cause Chronic Fatigue Syndrome, mostly amongst the experts who have to repeatedly answer the same questions.”

Kieran developed severe ME at 13 after glandular fever. He spent years bedbound, and unable to speak. Now 23, he’s working full-time. When asked how he improved, he said it was care from his family, advice from the ME community and possibly a bit of luck. #MECFS

"Covid has just ruined my life and the lives of so many other children" Samir, 16, has seen little improvement 5 yrs after developing #LongCovid. He is still disabled, housebound, and wheelchair-bound. The only medical help has been private because there was nothing on the NHS.

“It was horrendous, it was almost like being in a semi-coma. All my very basic bodily functions were struggling and my capacity to do anything like read or watch TV was zero.” Dr Nina Muirhead, describing how ME affected her in 2020 #MECFS

Having the reality of your illness denied “is almost as bad as the actual physical symptoms themselves.” Ed Yong, speaking about #LongCovid patients being disbelieved and dismissed, and how gender and racial bias affect their care.

“The harm you have done is incalculable. It’s not me who has been spreading great harm around the world. It’s you, mate.” George Monbiot on being accused by Prof Michael Sharpe of “spreading” #LongCovid by writing about it and why he started writing about the #MECFS scandal.

Highlights from today's BBC Breakfast Interview with @BinitaKane and Sarah Boothby (sarah) about Severe #MECFS and doctors who have had no training not understanding/listening when they see severly ill patients with #MECFS

Highlights segment about #MECFS on BBC Breakfast. Dr William Weir and @BinitaKane talk about the history of #MECFS how it has been psychologised and the frustrating lack of progress. There are now millions of patients with Long Covid and we have no treatments.

BBC Morning Live covered the new £4.75m UK government funded #MEcfs DNA study yesterday, which will sequence 6,000 samples as part of the wider DecodeME project. Unfortunately Dr Oscar Duke said Chronic Fatigue Syndrome is “probably the best way to describe” the illness.

New Video: George Monbiot describes the treatment of #MECFS as "The Greatest Medical Scandal of the 21st century". Watch the introduction to a new 27 minute explainer video about the scandal from reframing a recognised neurological illness to the withdrawal of harmful treatments.

Brief clip: Whoopi Goldberg raises concerns about #LongCovid on The View. She says one of her employees’ mothers has the condition and can no longer go out to do her job, so now works from home. She also raises concerns about the CDC.

🧵 Suzanne O’Sullivan on the Amol Rajan podcast says #LongCOVID is psychosomatic for a large proportion of patients. There are several problems with this claim.

“Most of the people I’ve seen with #MECFS are so much sicker than my cancer patients.” Dr. Fridbjörn Sigurdsson, a former medical oncologist now focused on ME/CFS, speaking at the 2025 @Invest_in_me conference. Thanks to ME/CFS Science for finding the clip.

New Video: Very Severe #MECFS is a debilitating condition causing profound suffering and life threatening symptoms. They are bedridden and dependent on care. Most doctors have had no training; leading to misdiagnosis, Inappropriate management and medical neglect.

BBC Look North. Dr Becky Williams, who has long Covid, and meets the criteria for ME/CFS has joined over 200 other healthcare workers calling on the government to provide better support. #ThereForME campaign

12-yr-old Aveline loved trapeze & sports until #LongCovid changed everything. “Within a day my entire life was flipped around… it’s been a constant battle against my own body.” “It’s really isolating. All my friends go to school together and I would give anything to be there.”