Adam

@ABrokenBattery • 8,107 subscribers

Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.

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Anya Rossi

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TW: Jon Stewart recently joked about hantavirus coverage and said: “this virus can cause Chronic Fatigue Syndrome, mostly amongst the experts who have to repeatedly answer the same questions.”

TW: Jon Stewart recently joked about hantavirus coverage and said: “this virus can cause Chronic Fatigue Syndrome, mostly amongst the experts who have to repeatedly answer the same questions.”

63,928 Aufrufe • vor 22 Tagen

“This is not a life, it is miserable. So how do I feel? Not even human anymore.” A 36-year-old woman with severe #MECFS confined to bed, on oxygen and a feeding tube, unable to tolerate light, sound or vibrations. Gwyn Clip from Swiss TV

“This is not a life, it is miserable. So how do I feel? Not even human anymore.” A 36-year-old woman with severe #MECFS confined to bed, on oxygen and a feeding tube, unable to tolerate light, sound or vibrations. Gwyn Clip from Swiss TV

21,084 Aufrufe • vor 8 Tagen

“I don’t think I can think of another condition that would be treated this way.” Dr Anna Brooks, Liggins Institute. A powerful opening to Zoe Madden-Smith’s award-winning RE:News documentary on #MECFS Also featuring Rhi

“I don’t think I can think of another condition that would be treated this way.” Dr Anna Brooks, Liggins Institute. A powerful opening to Zoe Madden-Smith’s award-winning RE:News documentary on #MECFS Also featuring Rhi

13,773 Aufrufe • vor 6 Tagen

“The injustice of it, I couldn’t believe it” Former Team GB rower Oonagh Cousins talking about the #MECFS “scandal” where patients were told they were deconditioned & needed Graded Exercise & CBT It is the “opposite of what they needed” & that legacy still runs “super deep”

“The injustice of it, I couldn’t believe it” Former Team GB rower Oonagh Cousins talking about the #MECFS “scandal” where patients were told they were deconditioned & needed Graded Exercise & CBT It is the “opposite of what they needed” & that legacy still runs “super deep”

20,868 Aufrufe • vor 11 Tagen

“They’ve had their lives completely demolished by this illness.” Millions are living with #LongCovid while society has moved on. Former Team GB rower Oonagh Cousins developed #MECFS following Covid and had to retire.

“They’ve had their lives completely demolished by this illness.” Millions are living with #LongCovid while society has moved on. Former Team GB rower Oonagh Cousins developed #MECFS following Covid and had to retire.

18,314 Aufrufe • vor 11 Tagen

"For years and years I've been passed from doctor to doctor with me saying I'm so fatigued I've got all this pain... and noone could give me any answers." Miranda Hart talking about her diagnosis of ME caused by Lyme Disease on the Graham Norton show. #MECFS

"For years and years I've been passed from doctor to doctor with me saying I'm so fatigued I've got all this pain... and noone could give me any answers." Miranda Hart talking about her diagnosis of ME caused by Lyme Disease on the Graham Norton show. #MECFS

567,567 Aufrufe • vor 1 Jahr

BBC Morning Live covered the new £4.75m UK government funded #MEcfs DNA study yesterday, which will sequence 6,000 samples as part of the wider DecodeME project. Unfortunately Dr Oscar Duke said Chronic Fatigue Syndrome is “probably the best way to describe” the illness.

BBC Morning Live covered the new £4.75m UK government funded #MEcfs DNA study yesterday, which will sequence 6,000 samples as part of the wider DecodeME project. Unfortunately Dr Oscar Duke said Chronic Fatigue Syndrome is “probably the best way to describe” the illness.

21,565 Aufrufe • vor 15 Tagen

Sleep hygiene can be just as “damaging as graded exercise” for patients with #MECFS Dr Nigel Speight describes a girl with severe sleep reversal. She walked into hospital and was carried out a month later needing to be tube fed.

Sleep hygiene can be just as “damaging as graded exercise” for patients with #MECFS Dr Nigel Speight describes a girl with severe sleep reversal. She walked into hospital and was carried out a month later needing to be tube fed.

27,336 Aufrufe • vor 21 Tagen

12-yr-old Aveline loved trapeze & sports until #LongCovid changed everything. “Within a day my entire life was flipped around… it’s been a constant battle against my own body.” “It’s really isolating. All my friends go to school together and I would give anything to be there.”

12-yr-old Aveline loved trapeze & sports until #LongCovid changed everything. “Within a day my entire life was flipped around… it’s been a constant battle against my own body.” “It’s really isolating. All my friends go to school together and I would give anything to be there.”

83,889 Aufrufe • vor 2 Monaten

Brief clip: Whoopi Goldberg raises concerns about #LongCovid on The View. She says one of her employees’ mothers has the condition and can no longer go out to do her job, so now works from home. She also raises concerns about the CDC.

Brief clip: Whoopi Goldberg raises concerns about #LongCovid on The View. She says one of her employees’ mothers has the condition and can no longer go out to do her job, so now works from home. She also raises concerns about the CDC.

38,466 Aufrufe • vor 1 Monat

Wes Streeting wants GPs to stop writing so many sick notes and send people to the gym. Worth remembering Brynmor John MP had #MECFS and died on Westminster Bridge in 1988 after exercising in the House of Commons gym. He had been advised to exercise his way back to fitness.

Wes Streeting wants GPs to stop writing so many sick notes and send people to the gym. Worth remembering Brynmor John MP had #MECFS and died on Westminster Bridge in 1988 after exercising in the House of Commons gym. He had been advised to exercise his way back to fitness.

23,076 Aufrufe • vor 28 Tagen

🧵 Suzanne O’Sullivan on the Amol Rajan podcast says #LongCOVID is psychosomatic for a large proportion of patients. There are several problems with this claim.

🧵 Suzanne O’Sullivan on the Amol Rajan podcast says #LongCOVID is psychosomatic for a large proportion of patients. There are several problems with this claim.

41,167 Aufrufe • vor 2 Monaten

Powerful testimony on #MECFS by Emma Shorter in the Scottish Parliament from 2018 “It turns fit and active people into ghosts… I know teachers who can’t teach, children who can’t play, and parents who can no longer hold their children.”

Powerful testimony on #MECFS by Emma Shorter in the Scottish Parliament from 2018 “It turns fit and active people into ghosts… I know teachers who can’t teach, children who can’t play, and parents who can no longer hold their children.”

30,649 Aufrufe • vor 1 Monat

Emma Shorter was told people who don’t recover from behavioral treatment for #MECFS have made the illness their personality. She was told not to meet other patients and to trust the therapist over her own body. She went from walking 4 mins a day to needing a wheelchair.

Emma Shorter was told people who don’t recover from behavioral treatment for #MECFS have made the illness their personality. She was told not to meet other patients and to trust the therapist over her own body. She went from walking 4 mins a day to needing a wheelchair.

29,039 Aufrufe • vor 1 Monat

Short German TV clip. #MECFS cases have doubled since 2020, many linked to #LongCovid. Patients describe lives wiped out overnight, years housebound or bedridden, and having to choose between showering or playing with their child.

Short German TV clip. #MECFS cases have doubled since 2020, many linked to #LongCovid. Patients describe lives wiped out overnight, years housebound or bedridden, and having to choose between showering or playing with their child.

21,909 Aufrufe • vor 1 Monat

Dr William Weir on how the influence of Simon Wessely and his colleagues created an overriding tendency among doctors to insist that #MECFS is a psychological disorder. Clip from Hope 4 ME & Fibro NI Collaboration for Change 2026

Dr William Weir on how the influence of Simon Wessely and his colleagues created an overriding tendency among doctors to insist that #MECFS is a psychological disorder. Clip from Hope 4 ME & Fibro NI Collaboration for Change 2026

31,278 Aufrufe • vor 1 Monat

“She actually asked me a couple of times, you know, am I going to die? She felt so unwell.” Isla is 10 and developed #MECFS after a COVID infection. She is 95% housebound and just wants to “have fun and do things with her friends”. From BBC Lifeline: Action for ME

“She actually asked me a couple of times, you know, am I going to die? She felt so unwell.” Isla is 10 and developed #MECFS after a COVID infection. She is 95% housebound and just wants to “have fun and do things with her friends”. From BBC Lifeline: Action for ME

19,073 Aufrufe • vor 1 Monat

Covid has led to an increase in #MECFS. In Germany, numbers have gone from ~250,000 to over 600,000 since the start of the pandemic. It’s been around for decades, yet many patients still aren’t believed and are given harmful advice by doctors, as one patient reports.

Covid has led to an increase in #MECFS. In Germany, numbers have gone from ~250,000 to over 600,000 since the start of the pandemic. It’s been around for decades, yet many patients still aren’t believed and are given harmful advice by doctors, as one patient reports.

33,363 Aufrufe • vor 2 Monaten

Professor Chris Ponting on the 116 blood molecule differences his team found in people with #MECFS “This is not a psychological disease” people did not alter their blood molecules just to “spook the psychiatrists”. Clip from Hope 4 ME & Fibro NI 2026

Professor Chris Ponting on the 116 blood molecule differences his team found in people with #MECFS “This is not a psychological disease” people did not alter their blood molecules just to “spook the psychiatrists”. Clip from Hope 4 ME & Fibro NI 2026

22,762 Aufrufe • vor 1 Monat

Highlights from today's BBC Breakfast Interview with Binita Kane and Sarah Boothby (sarah) about Severe #MECFS and doctors who have had no training not understanding/listening when they see severly ill patients with #MECFS

Highlights from today's BBC Breakfast Interview with Binita Kane and Sarah Boothby (sarah) about Severe #MECFS and doctors who have had no training not understanding/listening when they see severly ill patients with #MECFS

143,108 Aufrufe • vor 1 Jahr