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Brian Wallach

@bsw5020 • 141,956 subscribers

Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease. #ALSisHere #SoAreWe

Shorts

This is how I got out of bed this morning. It isn’t pretty, but I am so grateful to have today.

This is how I got out of bed this morning. It isn’t pretty, but I am so grateful to have today.

473,608 Aufrufe

Tonight I have a special good night moon.

Tonight I have a special good night moon.

248,293 Aufrufe

ALS has taken my strength and my voice but I can still fly down a mountain. I was supposed to die 8 years ago. But I’m still here. And having an awesome time. #NotTodayALS

ALS has taken my strength and my voice but I can still fly down a mountain. I was supposed to die 8 years ago. But I’m still here. And having an awesome time. #NotTodayALS

40,720 Aufrufe

Can’t stop, won’t stop. Thankful for my PT who keeps me moving.

Can’t stop, won’t stop. Thankful for my PT who keeps me moving.

32,276 Aufrufe

Videos

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Yesterday, I did something I haven’t been able to do in over two years. I drove my power wheelchair independently. Eye gaze is truly amazing. You can see how much this meant to me based on the smile on my face! 😁 Not today ALS. Definitely not today. 💪

Yesterday, I did something I haven’t been able to do in over two years. I drove my power wheelchair independently. Eye gaze is truly amazing. You can see how much this meant to me based on the smile on my face! 😁 Not today ALS. Definitely not today. 💪

79,344 Aufrufe • vor 1 Monat

Six years ago I was told to prepare to die. This is the improbable, inspiring, love-filled, hope-filled, true story about the extraordinary campaign that happened next. This is where you come in: please share this trailer with everyone so that we can bring hope to everyone.

Six years ago I was told to prepare to die. This is the improbable, inspiring, love-filled, hope-filled, true story about the extraordinary campaign that happened next. This is where you come in: please share this trailer with everyone so that we can bring hope to everyone.

1,517,261 Aufrufe • vor 3 Jahren

I walked again today. Each walk is harder but each walk is ever more important. I am so lucky to have an amazing team to help me. Not today ALS. Definitely not today.

I walked again today. Each walk is harder but each walk is ever more important. I am so lucky to have an amazing team to help me. Not today ALS. Definitely not today.

378,162 Aufrufe • vor 2 Jahren

This is the moment that we first found out about the amazing grant from Mackenzie Scott and her incredible foundation. I am so proud of the amazing IAA staff and community. As you will see, disbelief turns into happy tears. Today, I cannot stop smiling.

This is the moment that we first found out about the amazing grant from Mackenzie Scott and her incredible foundation. I am so proud of the amazing IAA staff and community. As you will see, disbelief turns into happy tears. Today, I cannot stop smiling.

272,927 Aufrufe • vor 2 Jahren

This morning I walked again. It is not pretty and I need a lot of help but I am still walking after seven years of living with ALS. Never ever give up.

This morning I walked again. It is not pretty and I need a lot of help but I am still walking after seven years of living with ALS. Never ever give up.

240,254 Aufrufe • vor 2 Jahren

I walked again today. Only this time I walked twice as far. Not today ALS. Definitely not today.

I walked again today. Only this time I walked twice as far. Not today ALS. Definitely not today.

312,593 Aufrufe • vor 3 Jahren

Today was a normal day except for one thing: I went skiing. Good night moon.

Today was a normal day except for one thing: I went skiing. Good night moon.

262,169 Aufrufe • vor 3 Jahren

Today, I walked. With a lot of help. I thought my days of walking were over, but they are far from over. As my ALS progressed, I stopped going to PT because the travel was too much. When Synapticure and Luna Physical Therapy announced a partnership to bring PT to my home...

Today, I walked. With a lot of help. I thought my days of walking were over, but they are far from over. As my ALS progressed, I stopped going to PT because the travel was too much. When Synapticure and Luna Physical Therapy announced a partnership to bring PT to my home...

259,040 Aufrufe • vor 3 Jahren

For all those who have been counted out or otherwise told they could not do something, this is for you. Never ever give up.

For all those who have been counted out or otherwise told they could not do something, this is for you. Never ever give up.

163,720 Aufrufe • vor 2 Jahren

On the first day of my birthday month, I walked again. I had a lot of help from my caregivers and my PT. When I was diagnosed I did not think I would be walking after seven years, but here we are!

On the first day of my birthday month, I walked again. I had a lot of help from my caregivers and my PT. When I was diagnosed I did not think I would be walking after seven years, but here we are!

142,745 Aufrufe • vor 1 Jahr

Today, a small miracle happened. Seven years after my symptom onset, I skied. No matter what your day is like, get ready to smile. I want to give a huge thank you to Paulette who moved mountains to make today happen and SkiHeavenly for an amazing day.

Today, a small miracle happened. Seven years after my symptom onset, I skied. No matter what your day is like, get ready to smile. I want to give a huge thank you to Paulette who moved mountains to make today happen and SkiHeavenly for an amazing day.

127,727 Aufrufe • vor 2 Jahren

This new video released today is an emotional walk down memory lane with United Airlines and the journey we have been on together building this movement. Thank you United Airlines you have always gone above and beyond for me and my family. Thank you, thank you, thank you. You can now watch For Love & Life: No Ordinary Campaign on both Prime Video and all United flights.

This new video released today is an emotional walk down memory lane with United Airlines and the journey we have been on together building this movement. Thank you United Airlines you have always gone above and beyond for me and my family. Thank you, thank you, thank you. You can now watch For Love & Life: No Ordinary Campaign on both Prime Video and all United flights.

101,849 Aufrufe • vor 2 Jahren

Last night, Sandra gave a powerful and beautiful speech. The full video is on my Instagram. Here I wanted to share what I said after her speech. Thank you for watching it. Thank you for sharing it. And thank you for giving us hope.

Last night, Sandra gave a powerful and beautiful speech. The full video is on my Instagram. Here I wanted to share what I said after her speech. Thank you for watching it. Thank you for sharing it. And thank you for giving us hope.

139,567 Aufrufe • vor 3 Jahren

Four weeks ago, my physical therapist set a goal for me to walk 10 feet today. With a lot of help, I walked 12 feet. Not today ALS. Not today.

Four weeks ago, my physical therapist set a goal for me to walk 10 feet today. With a lot of help, I walked 12 feet. Not today ALS. Not today.

131,612 Aufrufe • vor 3 Jahren

The best way to end ALS is for all of us to get genetic testing. If you do, it will unlock new treatments like Tofersen. If you have any questions or have not yet had testing, Synapticure is here for you. Visit to learn more.

The best way to end ALS is for all of us to get genetic testing. If you do, it will unlock new treatments like Tofersen. If you have any questions or have not yet had testing, Synapticure is here for you. Visit to learn more.

110,583 Aufrufe • vor 3 Jahren

No matter how hard it gets, never ever give up. Not today, ALS. Not today.

No matter how hard it gets, never ever give up. Not today, ALS. Not today.

77,759 Aufrufe • vor 2 Jahren

This is my synthetic voice. It means everything to me. Last year, Synapticure partnered with Team Gleason and Bridging Voice to make sure everyone has the same opportunity to create their voice. Speak on, my friends.

This is my synthetic voice. It means everything to me. Last year, Synapticure partnered with Team Gleason and Bridging Voice to make sure everyone has the same opportunity to create their voice. Speak on, my friends.

90,588 Aufrufe • vor 3 Jahren

Yesterday, I was exhausted but still, with a lot of help, I walked 15 feet. Take that, ALS. #NeverGiveUp

Yesterday, I was exhausted but still, with a lot of help, I walked 15 feet. Take that, ALS. #NeverGiveUp

66,190 Aufrufe • vor 3 Jahren