Míriam González
@miriamgonp • 43,450 subscribers
Engineer & tech content creator. Investigating my extremely rare metastatic breast tumour with AI. I share it all, in the open 👇
Videos
Llevo 28 meses con la enfermedad hasta hace 1 mes estaba controlada, ya no. En los análisis SEER del carcinoma neuroendocrino de la mama, la supervivencia global mediana para la enfermedad en estadio IV AJCC fue de 13 meses. mientras que en la cohorte de una sola institución norteamericana armonizada con OMS-2012, la SG mediana para el subgrupo metastásico al inicio fue de 30 meses. Por eso el momento de abordar la parte neuroendocrina es ahora
Míriam González145,714 просмотров • 4 месяцев назад
At 35 I was diagnosed with metastatic breast cancer. 80% of my tumor shows neuroendocrine differentiation. The Ga-68 scan lit up like a Christmas tree, clear proof of high somatostatin receptor expression. The World Health Organization classified this as a distinct subtype back in 2019. American and European guidelines already have specific treatment pathways… but in Spain we still don’t. So I’m being treated as standard breast cancer by default. That gap could cost me access to therapies that science already knows may work for my exact molecular profile. Time is not on my side with metastasis. I can’t wait years for the system to catch up. My oncology team is fighting hard for me within the current protocols, they are not the problem. The guidelines are. I’ve put all my molecular data, imaging and case details on so other patients and researchers can use it. If you share this video, you’re helping me get the right treatments faster… and you might be saving someone else’s life too. Please watch until the end and share if you can. Together we can push for change. 💪🎗️
Míriam González11,544 просмотров • 4 месяцев назад
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