Neurologist Mom
@NeurologistMom • 10,411 subscribers
A neurologist, M.D., mother of a 18-year-old with #Lupus #NeuroSjogrens #AutoimmuneEncephalopathy triggered by SARS-CoV-2 ⚠️ Occasionally blocks energy drains.
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We have great news from @putrinolab🙏🏻 They just submitted a paper about the initial results of a novel device they tested for Long COVID related cognitive impairment! Thank you for sending this video message, Dr. Putrino. 🙏🏻 #LC2026HopeVideos #LongCovidAwarenessDay2026
Neurologist Mom43,456 görüntüleme • 3 ay önce
The pattern we see in Long Covid looks very similar to what virologists described years ago with Hepatitis B. In Hepatitis B, people who got very sick during the acute infection were much more likely to clear the virus. Only 3% of the clinically diagnosed group became chronic carriers. But in the group that never seemed sick and was diagnosed later through blood tests, 14% became chronic carriers. In other words, people who had a milder or almost silent acute infection were more likely to end up with chronic infection. This pattern is familiar in Long Covid as well. Many people who were extremely sick during acute covid do not show high rates of Long Covid. The group that develops Long Covid in large numbers is the mild group and the moderate group, the ones who were told they were fine. Dr Robert Redfield Dana Parish
Neurologist Mom24,408 görüntüleme • 7 ay önce
I’m so glad I don’t live in the UK where the NHS tortures #MECFS patients to death, even though studies clearly show that exercise causes harm. You and your husband helped make this happen, but sadly the impact is global, and you’re being rewarded for it 👏🏻👏🏻
Neurologist Mom22,003 görüntüleme • 7 ay önce
"Can you see it now?" This is a very striking illustration of how #mecfs #neurocovid #longcovid patients feel every second of their lives. Reward comes of being gaslighted by the others, including their own families. Watch the video in fullscreen. Video credit: Trugrace Artistry
Neurologist Mom68,912 görüntüleme • 3 yıl önce
“Why can't we use encephalomyelitis? That means inflammation of the brain and spinal cord. When will we be able to use the name ME instead of ME/CFS and get rid of CFS? That's my main comment." Dr. Maureen Hanson, from today’s NIH meeting #MECFS #longcovid #longcovidkids
Neurologist Mom48,254 görüntüleme • 2 yıl önce
Long COVID has left millions, including children, disabled. This is a bipartisan issue. Thank you, Senator Todd Young and Robert F. Kennedy Jr. As a mother of a child whose life was destroyed by COVID-triggered health problems, I urge action so we can feel safe.
Neurologist Mom11,867 görüntüleme • 1 yıl önce
“Long COVID is not psychogenic, not psychiatric, not somatization, not FND, not caused by fear, not from your tears, not because you’re weak—and yes, you really are that sick. It’s not in your head, and it’s not from staying in bed… but it is physiologic, it is neurologic.” Svetlana Blitshteyn has a message for us. Well said, my dear friend! S Blitshteyn MD, FAAN, FANA, Dysautonomia Clinic 👏🏻👏🏻👏🏻 #LC2025hopevideos #longcovidawarenessday2025
Neurologist Mom10,866 görüntüleme • 1 yıl önce
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