silenceispower93

I know I’ve been slacking sooo bad on posting lately 😭😂 but Miss Carli had her 3-year checkup today and this was too cute not to share. Apparently the eye-checker things were actually fake nails 💅😂 She was putting them on her fingers, admiring them, and acting like she was at a nail appointment instead of the doctor. And honestly, that little moment says so much about her. Carli is 3 now, and while her life looks different from a lot of other kids her age because of LMNA-related congenital muscular dystrophy, she is still very much just a funny, opinionated little girl finding ways to make everything her own. Behind the cute pictures there’s a lot people don’t always see !!! therapy, braces, equipment, swallowing precautions, respiratory care, appointments, and a whole lot of adapting. But there’s also so much personality, laughter, learning and progress. She’s been working hard in therapy, learning to drive her power chair, finding new ways to be independent, and talking more and more every day. And then she does something like turn medical equipment into a fresh set of nails and reminds me how much joy there still is in the middle of all of it. 🥹💗 I really do need to stop slacking and start sharing more of her journey again, because awareness matters !!! but I also always want people to see Carli, not just her diagnosis. My silly, sweet little girl. Three years old and already keeping everybody entertained 💕💅 #nailinspo #MuscularDystrophyAwareness #medicalmom #findacure #rarediseaseawareness