
Sophie Blake
@sophieRblake • 16,786 subscribers
Former TV Presenter 📺 Patient Advocate Living with incurable breast cancer Ambassador @make2ndsCount Co founder Brighton & Hove Secondary Sisters 💗
Shorts
Videos

PET scan day 🫶🏼 It’s been six months since my last one, which feels like a blessing in some ways, another six months to happily live in my little bubble of denial…when I’m not campaigning! But when you’re living with Stage 4, the not knowing for so long can also be really difficult, especially when dealing with new pains. It’ll be four and a half years since I was diagnosed with stage 4 in May 2022, so it feels quite apt that this scan is happening during Breast Cancer Awareness Month. I also had another ECG for my heart as it’s being a little bit naughty this year, and had my bloods taken. So now the waiting begins, the scanxiety never gets easier. So fingers crossed, positive thoughts and whatever else you believe 🤞🏻 Sending lots of love to everyone else facing scans, results and all the anxiety that comes with them❤️ #BreastCancerAwarenessMonth #BreastCancer #MetastaticBreastCancer
Sophie Blake42,091 görüntüleme • 11 gün önce

WAITING 1,000 women. 2 years of waiting. Too many lives lost. We are the Brighton & Hove Secondary Sisters Many of us living with HER2-low secondary breast cancer are being denied access to Enhertu, a treatment that could give us more time, more life. We've already lost too many friends and fellow campaigners while waiting for this decision. April 2026 update: NICE has now increased the funding threshold. The money is there. So now the responsibility sits with Daiichi Sankyo UK and AstraZeneca Please re submit the deal to NICE immediately. Every delay means more lives cut short. This postcode lottery is costing time that we simply do not have Please share this video and tag the drug companies and contact your MP.
Sophie Blake147,359 görüntüleme • 6 ay önce

This is my beautiful friend Jeannie, who devastatingly died earlier this year while waiting for #Enhertu. Jeannie campaigned tirelessly, desperate for more time with her children, husband, family and friends. She knew this treatment could have her extra precious months, yet she never got the chance to access it. Please sign the petition and urge NICE to approve this life extending drug. We cannot allow thousands more women with HER2-low metastatic breast cancer to miss out on treatment and die before their time James Murray
Sophie Blake52,344 görüntüleme • 4 ay önce

Some of the incredible ladies from the Brighton & Hove secondary sisters group I co founded, have made this short plea to the government. We are here. We are alive. Please see us. On 5 February, Parliament will debate how people living with secondary (metastatic) breast cancer are treated in this country. For too long, we have been invisible. We are not rare. Metastatic breast cancer is the biggest killer of women between 35-64. We are not statistics that only appear once we’ve died. We are tens of thousands of people living, right now, with incurable cancer. Yet we are still only counted at death, not while we are living with complex needs, ongoing treatment, uncertainty, pain and fear. That invisibility shapes policy, funding, research priorities, and care, and it leaves us behind. We are asking for something simple, but transformative. Count us while we are alive. Collect meaningful, accurate data on how many of us there are, how we live, and what we need. Use that data to inform research, services, workforce planning, and support. Without this, we remain an afterthought. Without this, our experiences are dismissed. Without this, decisions are made about us, without us. We are mothers, daughters, partners, friends, professionals. We are living with terminal illness, but we are still living. Our time matters. Our quality of life matters. Our voices matter. This debate is a chance to finally acknowledge us, to stop erasing us, and to build systems that reflect reality, not silence. We desperately hope that the debate at Parliament led by Clive Jones and Mary Foy, will change how Secondary, Metastatic stage 4 cancer patients are treated. Please listen. Please act. Please count us. We have been invisible for too long #MetastaticBreastCancer #SecondaryBreastCancer #BreastCancer
Sophie Blake19,494 görüntüleme • 8 ay önce

Huge thanks to BBC Woman's Hour for having us on and for showing that life can still be joyful, meaningful and full after a Stage 4 diagnosis. And just for the record, as Maya still disagrees, I’m doubling down — Die Hard is absolutely a Christmas movie! 😆🎄
Sophie Blake15,493 görüntüleme • 10 ay önce

Thank you This Morning Ben Shephard & Cat Deeley for highlighting our #Enhertu protest outside of Parliament to Wes Streeting .I’m happy to hear that he’s against the postcode lottery, has seen our posts & is aware of the campaign. I now hope he steps up for us. NICE
Sophie Blake27,957 görüntüleme • 2 yıl önce
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