#mecfs
Dianna decided to shave her head to make it easier on herself for her journey with #LongCovid and #MECFS. Many people struggling with this disease choose to do this if bed-bound for extended periods of time, like Dianna has been. Hopefully she can avoid crashes, and reduce the amount of energy it takes to wash and maintain her hair every week. Millions of people are suffering from this disease. -Kyle (Dianna’s husband)
Dianna Cowern13,642,237 görüntüleme • 2 yıl önce
TW assisted suicide / #MEcfs It breaks my heart to share this video. It's Luigi saying goodbye shortly before MAID/assisted suicide due to ME/CFS on 11 July 2026. Nonetheless, I also believe people should not close their eyes or look away from what is happening here. Young people are dying — or "choosing" MAID — because their suffering has become unbearable. We need help. There are millions of us. Things have to change. Farewell, Luigi. 🕯🕊
Christina Koch34,663 görüntüleme • 22 gün önce
“I went down to 36 kg because I stopped being able to tolerate a whole range of foods.” Wendy Matthews has lived with #MECFS for 28 years and has been bedbound for the last 7. She talks about her symptoms, how the illness has impacted her, and how #MECFS is not rare.
Adam13,357 görüntüleme • 16 gün önce
“He was a doctor who ran marathons. Now, walking to the bathroom is harder than any marathon he ever ran. In this grade of severity ME is only invisible if people purposefully look away.” Evelien van den Brink calling for biomedical #MECFS research in European Parliament in 2019
Adam18,982 görüntüleme • 1 ay önce
BBC Morning Live covered the new £4.75m UK government funded #MEcfs DNA study yesterday, which will sequence 6,000 samples as part of the wider DecodeME project. Unfortunately Dr Oscar Duke said Chronic Fatigue Syndrome is “probably the best way to describe” the illness.
Adam35,898 görüntüleme • 2 ay önce
