#mecfs
Dianna decided to shave her head to make it easier on herself for her journey with #LongCovid and #MECFS. Many people struggling with this disease choose to do this if bed-bound for extended periods of time, like Dianna has been. Hopefully she can avoid crashes, and reduce the amount of energy it takes to wash and maintain her hair every week. Millions of people are suffering from this disease. -Kyle (Dianna’s husband)
Dianna Cowern13,641,426 просмотров • 2 лет назад
BBC Morning Live covered the new £4.75m UK government funded #MEcfs DNA study yesterday, which will sequence 6,000 samples as part of the wider DecodeME project. Unfortunately Dr Oscar Duke said Chronic Fatigue Syndrome is “probably the best way to describe” the illness.
Adam35,453 просмотров • 1 месяц назад
BBC Morning Live addresses complaints after Dr Oscar Duke said that Chronic Fatigue Syndrome was “probably the best way to describe” the illness. Feedback from viewers outlines how it trivialises the illness, is just one symptom, and it does not reflect the reality of #MECFS.
Adam18,437 просмотров • 19 дней назад
“The injustice of it, I couldn’t believe it” Former Team GB rower Oonagh Cousins talking about the #MECFS “scandal” where patients were told they were deconditioned & needed Graded Exercise & CBT It is the “opposite of what they needed” & that legacy still runs “super deep”
Adam21,116 просмотров • 27 дней назад
Highlights from recent German TV that looked at brain retraining for #MECFS. A doctor with #MECFS says the programme made her feel she just had to keep trying harder. She eventually suffered a severe crash. She is “angry” and says that these programmes are endangering people.
Adam12,669 просмотров • 16 дней назад
