#mecfs

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Dianna decided to shave her head to make it easier on herself for her journey with #LongCovid and #MECFS. Many people struggling with this disease choose to do this if bed-bound for extended periods of time, like Dianna has been. Hopefully she can avoid crashes, and reduce the amount of energy it takes to wash and maintain her hair every week. Millions of people are suffering from this disease. -Kyle (Dianna’s husband)

Dianna decided to shave her head to make it easier on herself for her journey with #LongCovid and #MECFS. Many people struggling with this disease choose to do this if bed-bound for extended periods of time, like Dianna has been. Hopefully she can avoid crashes, and reduce the amount of energy it takes to wash and maintain her hair every week. Millions of people are suffering from this disease. -Kyle (Dianna’s husband)

13,645,006 görüntüleme • 2 yıl önce

Save your spot at the global premiere of Unbound, a dance film created by twenty people living with #MECFS, #LongCovid, and other disabilities. July 29 at 6:30 PM ET REGISTER FOR FREE: #UnboundFilm #DisabilityCulture #LongCovid #MECFS

Save your spot at the global premiere of Unbound, a dance film created by twenty people living with #MECFS, #LongCovid, and other disabilities. July 29 at 6:30 PM ET REGISTER FOR FREE: #UnboundFilm #DisabilityCulture #LongCovid #MECFS

Solve ME/CFS Initiative

315,975 görüntüleme • 3 ay önce

Wow!!! Pediatrician Dr. Maria Bea Merscher Alves delivers a fiery, visibly pissed-off speech condemning the ongoing neglect of children with ME. We need all doctors, scientists, and politicians to speak out like this!! Source: #pwme #kidswithME #MECFS

Wow!!! Pediatrician Dr. Maria Bea Merscher Alves delivers a fiery, visibly pissed-off speech condemning the ongoing neglect of children with ME. We need all doctors, scientists, and politicians to speak out like this!! Source: #pwme #kidswithME #MECFS

Anil van der Zee ©

15,147 görüntüleme • 8 gün önce

“This health issue has nothing out there for you… There are specialist clinics, but they don’t have any doctors… It’s life decimating. I’m in bed 22 hours of the day” Former Olympic sprinter Beth Dobbin on her letter calling on PM Andy Burnham for more #MECFS research funding.

“This health issue has nothing out there for you… There are specialist clinics, but they don’t have any doctors… It’s life decimating. I’m in bed 22 hours of the day” Former Olympic sprinter Beth Dobbin on her letter calling on PM Andy Burnham for more #MECFS research funding.

12,668 görüntüleme • 8 gün önce

"For years and years I've been passed from doctor to doctor with me saying I'm so fatigued I've got all this pain... and noone could give me any answers." Miranda Hart talking about her diagnosis of ME caused by Lyme Disease on the Graham Norton show. #MECFS

"For years and years I've been passed from doctor to doctor with me saying I'm so fatigued I've got all this pain... and noone could give me any answers." Miranda Hart talking about her diagnosis of ME caused by Lyme Disease on the Graham Norton show. #MECFS

569,523 görüntüleme • 2 yıl önce

TW: Assisted suicide “She did not want to die. She wanted to live. Just not like this.” Report on the devastating impact of severe #MECFS and how more and more people with severe ME are choosing assisted suicide in Germany.

TW: Assisted suicide “She did not want to die. She wanted to live. Just not like this.” Report on the devastating impact of severe #MECFS and how more and more people with severe ME are choosing assisted suicide in Germany.

22,197 görüntüleme • 21 gün önce

“I’ve gone from training five hours a day to being bedbound 22 and a half hours a day.” Former GB sprinter Beth Dobbin describes how #ME has changed her life. #MECFS

“I’ve gone from training five hours a day to being bedbound 22 and a half hours a day.” Former GB sprinter Beth Dobbin describes how #ME has changed her life. #MECFS

17,108 görüntüleme • 27 gün önce

Dianna Dianna Cowern keeps showing us that there is hope for the millions of people suffering out there after infections. To everyone affected by #LongCovid and #MECFS, recovery can be slow, but it is possible! Don't give up! ❤️‍🩹

Dianna Dianna Cowern keeps showing us that there is hope for the millions of people suffering out there after infections. To everyone affected by #LongCovid and #MECFS, recovery can be slow, but it is possible! Don't give up! ❤️‍🩹

Danielle Beckman

185,731 görüntüleme • 1 yıl önce

Millionen Menschen sind weltweit von #MECFS betroffen. Noch immer ist die Krankheit viel zu wenig erforscht, noch immer bei zu vielen unbekannt. Helft mit, aufmerksam zu machen. #lemonchallengemecfs

Millionen Menschen sind weltweit von #MECFS betroffen. Noch immer ist die Krankheit viel zu wenig erforscht, noch immer bei zu vielen unbekannt. Helft mit, aufmerksam zu machen. #lemonchallengemecfs

Katrin Göring-Eckardt

182,149 görüntüleme • 1 yıl önce

Von #LongCovid, #MECFS und #PostVac sind Hundertausende in Deutschland betroffen. Oft ignoriert müssen wir endlich denen zuhören, die es am besten wissen: den Betroffenen, ihren Anverwandten, den Selbsthilfeorganisationen, den Mediziner*innen & Forschenden. #LongCovidAwarenessDay

Von #LongCovid, #MECFS und #PostVac sind Hundertausende in Deutschland betroffen. Oft ignoriert müssen wir endlich denen zuhören, die es am besten wissen: den Betroffenen, ihren Anverwandten, den Selbsthilfeorganisationen, den Mediziner*innen & Forschenden. #LongCovidAwarenessDay

Katrin Göring-Eckardt

282,708 görüntüleme • 3 yıl önce

“It was horrendous, it was almost like being in a semi-coma. All my very basic bodily functions were struggling and my capacity to do anything like read or watch TV was zero.” Dr Nina Muirhead, describing how ME affected her in 2020 #MECFS

“It was horrendous, it was almost like being in a semi-coma. All my very basic bodily functions were struggling and my capacity to do anything like read or watch TV was zero.” Dr Nina Muirhead, describing how ME affected her in 2020 #MECFS

38,280 görüntüleme • 4 ay önce

TW assisted suicide / #MEcfs It breaks my heart to share this video. It's Luigi saying goodbye shortly before MAID/assisted suicide due to ME/CFS on 11 July 2026. Nonetheless, I also believe people should not close their eyes or look away from what is happening here. Young people are dying — or "choosing" MAID — because their suffering has become unbearable. We need help. There are millions of us. Things have to change. Farewell, Luigi. 🕯🕊

TW assisted suicide / #MEcfs It breaks my heart to share this video. It's Luigi saying goodbye shortly before MAID/assisted suicide due to ME/CFS on 11 July 2026. Nonetheless, I also believe people should not close their eyes or look away from what is happening here. Young people are dying — or "choosing" MAID — because their suffering has become unbearable. We need help. There are millions of us. Things have to change. Farewell, Luigi. 🕯🕊

34,758 görüntüleme • 4 ay önce