#mecfs

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Dianna decided to shave her head to make it easier on herself for her journey with #LongCovid and #MECFS. Many people struggling with this disease choose to do this if bed-bound for extended periods of time, like Dianna has been. Hopefully she can avoid crashes, and reduce the amount of energy it takes to wash and maintain her hair every week. Millions of people are suffering from this disease. -Kyle (Dianna’s husband)

Dianna decided to shave her head to make it easier on herself for her journey with #LongCovid and #MECFS. Many people struggling with this disease choose to do this if bed-bound for extended periods of time, like Dianna has been. Hopefully she can avoid crashes, and reduce the amount of energy it takes to wash and maintain her hair every week. Millions of people are suffering from this disease. -Kyle (Dianna’s husband)

13,644,102 次观看 • 2 年前

Save your spot at the global premiere of Unbound, a dance film created by twenty people living with #MECFS, #LongCovid, and other disabilities. July 29 at 6:30 PM ET REGISTER FOR FREE: #UnboundFilm #DisabilityCulture #LongCovid #MECFS

Save your spot at the global premiere of Unbound, a dance film created by twenty people living with #MECFS, #LongCovid, and other disabilities. July 29 at 6:30 PM ET REGISTER FOR FREE: #UnboundFilm #DisabilityCulture #LongCovid #MECFS

Solve ME/CFS Initiative

314,973 次观看 • 2 个月前

"For years and years I've been passed from doctor to doctor with me saying I'm so fatigued I've got all this pain... and noone could give me any answers." Miranda Hart talking about her diagnosis of ME caused by Lyme Disease on the Graham Norton show. #MECFS

"For years and years I've been passed from doctor to doctor with me saying I'm so fatigued I've got all this pain... and noone could give me any answers." Miranda Hart talking about her diagnosis of ME caused by Lyme Disease on the Graham Norton show. #MECFS

568,338 次观看 • 1 年前

“It was horrendous, it was almost like being in a semi-coma. All my very basic bodily functions were struggling and my capacity to do anything like read or watch TV was zero.” Dr Nina Muirhead, describing how ME affected her in 2020 #MECFS

“It was horrendous, it was almost like being in a semi-coma. All my very basic bodily functions were struggling and my capacity to do anything like read or watch TV was zero.” Dr Nina Muirhead, describing how ME affected her in 2020 #MECFS

38,242 次观看 • 2 个月前

TW assisted suicide / #MEcfs It breaks my heart to share this video. It's Luigi saying goodbye shortly before MAID/assisted suicide due to ME/CFS on 11 July 2026. Nonetheless, I also believe people should not close their eyes or look away from what is happening here. Young people are dying — or "choosing" MAID — because their suffering has become unbearable. We need help. There are millions of us. Things have to change. Farewell, Luigi. 🕯🕊

TW assisted suicide / #MEcfs It breaks my heart to share this video. It's Luigi saying goodbye shortly before MAID/assisted suicide due to ME/CFS on 11 July 2026. Nonetheless, I also believe people should not close their eyes or look away from what is happening here. Young people are dying — or "choosing" MAID — because their suffering has become unbearable. We need help. There are millions of us. Things have to change. Farewell, Luigi. 🕯🕊

34,758 次观看 • 2 个月前

Dianna Dianna Cowern keeps showing us that there is hope for the millions of people suffering out there after infections. To everyone affected by #LongCovid and #MECFS, recovery can be slow, but it is possible! Don't give up! ❤️‍🩹

Dianna Dianna Cowern keeps showing us that there is hope for the millions of people suffering out there after infections. To everyone affected by #LongCovid and #MECFS, recovery can be slow, but it is possible! Don't give up! ❤️‍🩹

Danielle Beckman

185,731 次观看 • 1 年前

Millionen Menschen sind weltweit von #MECFS betroffen. Noch immer ist die Krankheit viel zu wenig erforscht, noch immer bei zu vielen unbekannt. Helft mit, aufmerksam zu machen. #lemonchallengemecfs

Millionen Menschen sind weltweit von #MECFS betroffen. Noch immer ist die Krankheit viel zu wenig erforscht, noch immer bei zu vielen unbekannt. Helft mit, aufmerksam zu machen. #lemonchallengemecfs

Katrin Göring-Eckardt

182,048 次观看 • 1 年前

Von #LongCovid, #MECFS und #PostVac sind Hundertausende in Deutschland betroffen. Oft ignoriert müssen wir endlich denen zuhören, die es am besten wissen: den Betroffenen, ihren Anverwandten, den Selbsthilfeorganisationen, den Mediziner*innen & Forschenden. #LongCovidAwarenessDay

Von #LongCovid, #MECFS und #PostVac sind Hundertausende in Deutschland betroffen. Oft ignoriert müssen wir endlich denen zuhören, die es am besten wissen: den Betroffenen, ihren Anverwandten, den Selbsthilfeorganisationen, den Mediziner*innen & Forschenden. #LongCovidAwarenessDay

Katrin Göring-Eckardt

282,699 次观看 • 3 年前

ISLC-PAIS 2026 Young Investigator Award Huge congratulations to Dr. Danielle Beckman, PhD on receiving the ISLC-PAIS 2026 Young Investigator Award, recognition of her outstanding research into Long COVID and post-acute infection syndromes. #ISLCPAIS #LongCOVID #PAIS #MEcfs

ISLC-PAIS 2026 Young Investigator Award Huge congratulations to Dr. Danielle Beckman, PhD on receiving the ISLC-PAIS 2026 Young Investigator Award, recognition of her outstanding research into Long COVID and post-acute infection syndromes. #ISLCPAIS #LongCOVID #PAIS #MEcfs

@longcovidtheanswers

11,124 次观看 • 26 天前

BBC Morning Live covered the new £4.75m UK government funded #MEcfs DNA study yesterday, which will sequence 6,000 samples as part of the wider DecodeME project. Unfortunately Dr Oscar Duke said Chronic Fatigue Syndrome is “probably the best way to describe” the illness.

BBC Morning Live covered the new £4.75m UK government funded #MEcfs DNA study yesterday, which will sequence 6,000 samples as part of the wider DecodeME project. Unfortunately Dr Oscar Duke said Chronic Fatigue Syndrome is “probably the best way to describe” the illness.

36,016 次观看 • 4 个月前

If you have to watch one single video in your life about Myalgic Encephalomyelitis (#MECFS), please watch the one below by Jennifer Brea🦒. Since the pandemic started, the number of people suffering like this has skyrocketed. The time to inform ourselves is now. #LongCovid

If you have to watch one single video in your life about Myalgic Encephalomyelitis (#MECFS), please watch the one below by Jennifer Brea🦒. Since the pandemic started, the number of people suffering like this has skyrocketed. The time to inform ourselves is now. #LongCovid

Danielle Beckman

163,021 次观看 • 2 年前

Highlights from today's BBC Breakfast Interview with @BinitaKane and Sarah Boothby (sarah) about Severe #MECFS and doctors who have had no training not understanding/listening when they see severly ill patients with #MECFS

Highlights from today's BBC Breakfast Interview with @BinitaKane and Sarah Boothby (sarah) about Severe #MECFS and doctors who have had no training not understanding/listening when they see severly ill patients with #MECFS

143,195 次观看 • 2 年前