#nemalinemyopathy
“When I go to Spokane”🤣 #nemalinemyopathy #arthrogryposis #fishing #spokane #toddler
jacksonsnmjourney106,700 Aufrufe • vor 15 Tagen
A conversation like this at 2?!🤯 #nemalinemyopathy #arthrogryposis #smart #physicaltherapy #disability
jacksonsnmjourney1,100,000 Aufrufe • vor 8 Monaten
Replying to @Chaoscoordinator Jackson disagrees. #smart #patient #gentle #kind #toddlersoftiktok #nemalinemyopathy #gtube #feedingtherapy #19monthsold #family #fyp #disability #jacksonsjourney #neuromusculardisease #fypシ゚viral #fyppppppppppppppppppppppp #babytalk #tubielife #fy #thankyou
jacksonsnmjourney2,000,000 Aufrufe • vor 1 Jahr
I love their love😭 #acta1 #raregeneticdisorder #nemalinemyopathy #christiantiktok #godisgood
brooke buckley198,400 Aufrufe • vor 2 Monaten
Nemaline myopathy affects 1 in every 50,000 births per year. For our case, it's genetically inherited, I have this gene mutation. For me, they say it's a spontaneous gene mutation. With that said. this rare disease effects our whole body & some more severe then other areas. we struggle with muscle weakness & when we use said muscles they get stressed & fatigued. it effects our lungs & heart. our swallowing muscle & talking muscles. facial weakness is strong & it's hard to smile some days. for Ezmile it's worse. his face muscles don't let him make a full smile. breaks my heart... but we are strong through it all. even with no cure. praying one day in his life time they'll be a cure though. 🙏🏼 💙✨️ #viraltiktok #teamwork #nemalinemyopathy #momsoftiktok #mentalhealth #spooniesoftiktok #chronicillness #mobilityaid #repost
𝓡𝓪𝓻𝓮.𝓫𝓾𝓽𝓽𝓮𝓻𝓯𝓵𝔂🦋41,900 Aufrufe • vor 2 Jahren
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