#nemalinemyopathy
Replying to @Chaoscoordinator Jackson disagrees. #smart #patient #gentle #kind #toddlersoftiktok #nemalinemyopathy #gtube #feedingtherapy #19monthsold #family #fyp #disability #jacksonsjourney #neuromusculardisease #fypシ゚viral #fyppppppppppppppppppppppp #babytalk #tubielife #fy #thankyou
jacksonsnmjourney2,000,000 次观看 • 1 年前
Nemaline myopathy affects 1 in every 50,000 births per year. For our case, it's genetically inherited, I have this gene mutation. For me, they say it's a spontaneous gene mutation. With that said. this rare disease effects our whole body & some more severe then other areas. we struggle with muscle weakness & when we use said muscles they get stressed & fatigued. it effects our lungs & heart. our swallowing muscle & talking muscles. facial weakness is strong & it's hard to smile some days. for Ezmile it's worse. his face muscles don't let him make a full smile. breaks my heart... but we are strong through it all. even with no cure. praying one day in his life time they'll be a cure though. 🙏🏼 💙✨️ #viraltiktok #teamwork #nemalinemyopathy #momsoftiktok #mentalhealth #spooniesoftiktok #chronicillness #mobilityaid #repost
𝓡𝓪𝓻𝓮.𝓫𝓾𝓽𝓽𝓮𝓻𝓯𝓵𝔂🦋41,900 次观看 • 2 年前
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