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Heute vor 16 Wochen ist Sarah Buckel durch assistierten Suizid gestorben, weil sie das Leid von schwerem #MEcfs und #POTS nicht mehr aushalten konnte. Sie erkrankte 2022 nach einer Covid-Infektion. Sarah wurde 31 Jahre alt. #LongCovid 🖤

Heute vor 16 Wochen ist Sarah Buckel durch assistierten Suizid gestorben, weil sie das Leid von schwerem #MEcfs und #POTS nicht mehr aushalten konnte. Sie erkrankte 2022 nach einer Covid-Infektion. Sarah wurde 31 Jahre alt. #LongCovid 🖤

64,572 просмотров • 7 месяцев назад

I’ve gotten a lot of comments about weight gain etc and I’m fine with ny appearance but unfortunately others think otherwise. Here is my story on how I got #POTS from #Longcovid this isn’t a sympathy post. I just wanted to share some knowledge on my life and how it’s been since #dysautinomia

I’ve gotten a lot of comments about weight gain etc and I’m fine with ny appearance but unfortunately others think otherwise. Here is my story on how I got #POTS from #Longcovid this isn’t a sympathy post. I just wanted to share some knowledge on my life and how it’s been since #dysautinomia

117,610 просмотров • 1 год назад

I went down a rabbit hole reading #Reddit threads where physicians talk about their patients — especially those with ME/#CFS, #POTS, and complex autonomic disorders. Some of what’s being said goes beyond frustration — it reflects a deep lack of understanding and compassion.

I went down a rabbit hole reading #Reddit threads where physicians talk about their patients — especially those with ME/#CFS, #POTS, and complex autonomic disorders. Some of what’s being said goes beyond frustration — it reflects a deep lack of understanding and compassion.

Dr Nathan Keiser

27,727 просмотров • 3 месяцев назад

Thank you so much to Dr Amir Khan GP for making this excellent educational video about #PoTS 🙌🏻 Please help by sharing this today for ⭐️#PoTSAwarenessDay⭐️ PoTS can develop after viruses, such as #COVID19 Comorbidities can include: Myalgic Encephalomyelitis (#MECFS), Ehlers-Danlos Syndrome (#EDS), Mast Cell Activation Syndrome (#MCAS), Inappropriate Sinus Tachycardia. For more information about this condition please visit our website: #TakeAStandForPoTS #MedTwitter #NurseTwitter #MedEd #TeamGP #LongCovid Dr Ranj BSc (Hons) MBBS MRCPCH 𝑫𝒓 𝑵𝒊𝒈𝒉𝒂𝒕 𝑨𝒓𝒊𝒇 Dr Sara Kayat Dr Ellie Neena Jha @drclairetaylor Barney Calman

Thank you so much to Dr Amir Khan GP for making this excellent educational video about #PoTS 🙌🏻 Please help by sharing this today for ⭐️#PoTSAwarenessDay⭐️ PoTS can develop after viruses, such as #COVID19 Comorbidities can include: Myalgic Encephalomyelitis (#MECFS), Ehlers-Danlos Syndrome (#EDS), Mast Cell Activation Syndrome (#MCAS), Inappropriate Sinus Tachycardia. For more information about this condition please visit our website: #TakeAStandForPoTS #MedTwitter #NurseTwitter #MedEd #TeamGP #LongCovid Dr Ranj BSc (Hons) MBBS MRCPCH 𝑫𝒓 𝑵𝒊𝒈𝒉𝒂𝒕 𝑨𝒓𝒊𝒇 Dr Sara Kayat Dr Ellie Neena Jha @drclairetaylor Barney Calman

94,216 просмотров • 2 лет назад

I don’t think I’ll ever bore of this memory popping up on my phone. 9 YEARS bedridden to walking again. Oooph… that was some challenge I tell you. Still only able to do a few steps due to my #POTS and autonomic nervous system not behaving, but my goodness, I feel like I won the lottery ❤️

I don’t think I’ll ever bore of this memory popping up on my phone. 9 YEARS bedridden to walking again. Oooph… that was some challenge I tell you. Still only able to do a few steps due to my #POTS and autonomic nervous system not behaving, but my goodness, I feel like I won the lottery ❤️

61,625 просмотров • 1 год назад

Update on my friend Beth. She suffers with SEVERE #MCAS & co-morbidities ie #POTS etc Now she been diagnosed with a brain tumour😢💔 I relate SO MUCH with Beth and her conditions, as I suffer from the majority although #SARSCoV2 triggered ALL mine inc 🧠 damage & cysts

Update on my friend Beth. She suffers with SEVERE #MCAS & co-morbidities ie #POTS etc Now she been diagnosed with a brain tumour😢💔 I relate SO MUCH with Beth and her conditions, as I suffer from the majority although #SARSCoV2 triggered ALL mine inc 🧠 damage & cysts

38,716 просмотров • 11 месяцев назад

FELONY official video OUT NOW on YouTube! #pots

FELONY official video OUT NOW on YouTube! #pots

Ayo Maff 🥷🏽

25,872 просмотров • 7 месяцев назад

Everyone says “just pace.” But what if you’re pacing the wrong thing? In #POTS, #concussion, #MECFS — there’s usually ONE bottleneck system crashing everything. Find it. Train it. Build it. That’s how capacity grows. #chronicfatigue

Everyone says “just pace.” But what if you’re pacing the wrong thing? In #POTS, #concussion, #MECFS — there’s usually ONE bottleneck system crashing everything. Find it. Train it. Build it. That’s how capacity grows. #chronicfatigue

Dr Nathan Keiser

15,005 просмотров • 3 месяцев назад

Our NEW ⭐️What is PoTS⭐️ video! To mark the first day of #DysautonomiaAwarenessMonth (disorders of the autonomic nervous system) please educate about #PoTS by sharing our new ‘What is PoTS’ video💜 This video gives a summary of symptoms, QOL, associated conditions & treatments. Potential triggers: viruses, bacterial infection, pregnancy, surgery, a traumatic event, immunisation. #PoTSPledge #PoTSAwarenessDay #LongCovid #MECFS #EDS #MCAS 𝑫𝒓 𝑵𝒊𝒈𝒉𝒂𝒕 𝑨𝒓𝒊𝒇 @drclairetaylor BMA Students Fred Smith General Practice Cat Smith MP

Our NEW ⭐️What is PoTS⭐️ video! To mark the first day of #DysautonomiaAwarenessMonth (disorders of the autonomic nervous system) please educate about #PoTS by sharing our new ‘What is PoTS’ video💜 This video gives a summary of symptoms, QOL, associated conditions & treatments. Potential triggers: viruses, bacterial infection, pregnancy, surgery, a traumatic event, immunisation. #PoTSPledge #PoTSAwarenessDay #LongCovid #MECFS #EDS #MCAS 𝑫𝒓 𝑵𝒊𝒈𝒉𝒂𝒕 𝑨𝒓𝒊𝒇 @drclairetaylor BMA Students Fred Smith General Practice Cat Smith MP

47,801 просмотров • 1 год назад

If you have #POTS and symptoms of head pressure, this might explain why. Sometimes the #tachycardia isn’t primary — it’s compensating for impaired venous drainage and elevated intracranial pressure. #IIH #dysautonomia

If you have #POTS and symptoms of head pressure, this might explain why. Sometimes the #tachycardia isn’t primary — it’s compensating for impaired venous drainage and elevated intracranial pressure. #IIH #dysautonomia

Dr Nathan Keiser

13,126 просмотров • 3 месяцев назад

[Trick 👀🪄] Why am I so lucky today? 😭😁🔥 Got Wan-Bissaka my only target on the first try! #POTS #PremierLeague #eFootball

[Trick 👀🪄] Why am I so lucky today? 😭😁🔥 Got Wan-Bissaka my only target on the first try! #POTS #PremierLeague #eFootball

27,269 просмотров • 1 год назад

On #PoTSAwarenessDay here is a snapshot of my life living with #PoTS and #LongCovid 👇 Fatigue +++ High heart rate Palpitations, dizziness Shortness of breath Chest pain, gut problems Need for rest, rest, rest Lots of health appointments and tests Medication #PoTSAwarenessDay

On #PoTSAwarenessDay here is a snapshot of my life living with #PoTS and #LongCovid 👇 Fatigue +++ High heart rate Palpitations, dizziness Shortness of breath Chest pain, gut problems Need for rest, rest, rest Lots of health appointments and tests Medication #PoTSAwarenessDay

Darren Parkinson 🌍💚💙

26,417 просмотров • 1 год назад