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31 years after her #retinitispigmentosa diagnosis, Nancy is experiencing change through treatment in the #OCU400 clinical trial. She reports better definition, improved light adaptation, and can read without a magnifier. Modifier gene therapy:

10,238 views • 5 months ago •via X (Twitter)

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Maddie used to do cartwheels and back handsprings. She played basketball and soccer. She made the TikTok dance videos every kid her age was making. Then she volunteered for the Pfizer COVID-19 trial. She was 12. Now she lives in a wheelchair with a permanent feeding tube in her stomach. Her story comes from Brianne Dressen, who was severely injured in the AstraZeneca COVID-19 trial herself and went on to co-found REACT19, a nonprofit she says now supports more than 36,000 injured Americans. Maddie is one of them. What followed the injury, Dressen says, wasn't care. It was abandonment. "She has been through a horrific experience of not being recorded appropriately by the clinical trial company. She was inappropriately investigated by the FDA. She was not cared for after her injury by the drug company or the hospital that was running the clinical trial. In fact, she was gaslit." What finally slowed the damage was IVIG, which Dressen says Maddie got in part through REACT19, not through the people who ran her trial. She's still in a wheelchair. She's still in physical therapy for hours a day, fighting to make her feet, her toes, her knees move again. Dressen describes a child having multiple seizures a day, numbness climbing up her body, unable to lift her head or see correctly. She says Maddie had a litany of well-documented medical records proving something was physiologically wrong, and that for years no one would take her seriously. The NIH gave her doctors guidance. Like Dressen's own doctors, she says, they ignored it. Her verdict on what the drug company and the government did to a 12-year-old: "They left her for dead."

Epoch Health

11,114 views • 29 days ago