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💜 One Last Update! 💜 Last week when we were in Minnesota for Clark’s 6-month follow-up for his clinical trial, of all the tests they ran, the one we were both most anxious and most eager to see results from was his brain MRI. For children with untreated Sanfilippo Type A, it’s typical to see 2–5% loss of brain volume each year, along with enlargement of the ventricles (the fluid-filled spaces in the brain). This is one of the most heartbreaking parts of the disease — watching the brain slowly lose tissue and function over time. We were so nervous that Clark’s MRI might show some loss compared to his baseline scan 6 months ago. But the results came back and… ✨ ZERO change. ✨ His brain volume and ventricle size were completely stable — no loss at all. This is such an incredible sign that the treatment may be doing exactly what it’s meant to: clearing the toxic waste from his brain cells and protecting his brain from further damage. If feel that it is SO important for us to share these results as they come because people need to be FULLY aware that these treatments that are out there WORK. These children with Sanfilippo do not need to regress and they DEFINITELY do not have to have their lives cut short. We just need the FDA to say yes. We are so close to a reality where Sanfilippo syndrome is as manageable as a disease like diabetes. P.S. Enjoy this video of our little sunshine having the best time singing!

Brutus Stark

48,090 görüntüleme • 11 ay önce

It wasn’t about the trade but it’s about the confidence and mind set There are a lot of stories behind this account and it make the best of my trades of the year so far. A lot of nonsense happen this month after a long wait for something it came and you crashed it But as a resilience trader you ask for the last $6k that your client has and his response was Greatmann I believe in you and I am funding it now now … Most client lost trust in you because of loss they will call you names and insult you as if they gave birth to you. But you know o have never gotten a client that so much encourage me like Mr Dan He funded the $6k usd yesterday and as at today I made over $62,212 as profit Yes you hear me right 💪 It’s one of my best trade for a very long time in size it’s small compare to other account I am trading but this became the best because I was so careful that I pick losses in some places despite I know it will profit me but I just don’t want to take chances but all I want to say is any thing is posible in forex and so many of this type of account has been crashed by me but this one survived. So don’t because of this think I am a guru no But I am a resilience trading that will keep funding until I got it right like this 😂 🦁 I am the fxLion Your mind go dey Don’t try this as it is very dangerous Why am I sharing this ? Because I want you all to know that we have dofrent type of people in the world and we have different risk appetite and ways of handling losses Mehn I don over loose in this forex oo but we move Be encouraged that one day God will deliver gold into Your hand like this 😂 Another happy part is that I just hit over $50 billion trading volume with Exness therefore, it qualifies me to receive a gift of luxury watch worth $20,000 thanks Exness as I wait for the watch Make I flex it for December lol Forex no easy oo You can retweet to encourage someone but don’t risk more than your blood lol

FxLion

18,135 görüntüleme • 1 yıl önce