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For Jasmine Ritchie, every day is a challenge. She has a rare skin condition called Epidermolysis Bullosa, and lives in excruciating pain. The condition means the 'glue' that holds the layers of skin together is missing, causing it to blister at the most delicate touch.

Good Morning Britain

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63,788 次观看 • 1 年前 •via X (Twitter)

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Every day is an uphill battle for 13-year-old Jasmine Ritchie, who has a rare skin condition called Epidermolysis Bullosa, also known as butterfly skin, which causes her skin to blister and tear at the slightest touch. Jasmine's mum, Anna, and Grandad Robert took on their own challenge to raise money for those living with the skin disorder by climbing Mount Kilimanjaro. Anna recalls the experience as Graeme Souness explains why raising awareness and money is so important. Susanna Reid | Ed Balls | DEBRA UK

Every day is an uphill battle for 13-year-old Jasmine Ritchie, who has a rare skin condition called Epidermolysis Bullosa, also known as butterfly skin, which causes her skin to blister and tear at the slightest touch. Jasmine's mum, Anna, and Grandad Robert took on their own challenge to raise money for those living with the skin disorder by climbing Mount Kilimanjaro. Anna recalls the experience as Graeme Souness explains why raising awareness and money is so important. Susanna Reid | Ed Balls | DEBRA UK

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Dean was born with epidermolysis bullosa, a rare genetic condition that causes his skin to blister and tear at the slightest touch. Despite being given just two years to live when he was born, he has defied the odds and is now 46 years old.

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Liverpool legend Graeme Souness is swimming to Calais and back to raise money for DEBRA UK for research into treatments for the rare skin condition Epidermolysis Bullosa. Isla Grist, who lives with the condition, talks about her friendship with Graeme and how much his support means to her.

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anyone looking for a good cause to raise £ for look no further than DEBRA UK and the work they do for sufferers of epidermolysis bullosa (EB) a rare and painful skin condition. People - alot of them kids - living in 24/7 pain. Heartbreaking stuff. Graeme Souness is president

anyone looking for a good cause to raise £ for look no further than DEBRA UK and the work they do for sufferers of epidermolysis bullosa (EB) a rare and painful skin condition. People - alot of them kids - living in 24/7 pain. Heartbreaking stuff. Graeme Souness is president

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Shahd lives with Epidermolysis Bullosa (EB), a rare genetic condition that causes her skin to blister and tear with the slightest touch. Every day is painful. Every movement is a risk. Her care requires constant medical creams, intensive skin moisturization, eye drops, and specialized long-term treatment. She will also need reconstructive surgeries to prevent further damage to her body. Her family came to us with one hope: that someone would finally help Shahd continue her treatment and obtain a medical referral to receive care outside Gaza. This is what the Medical Campaign exists for. These are the lives your support touches. Shahd’s story is just one example of the urgent need for sustained medical care. Donate to the Medical Campaign and stand with Shahd on her journey toward healing. Other ways to donate include: (Paypal option, please make sure to add a message saying "Medical") (Venmo option, please make sure to add a message saying "Medical")

Shahd lives with Epidermolysis Bullosa (EB), a rare genetic condition that causes her skin to blister and tear with the slightest touch. Every day is painful. Every movement is a risk. Her care requires constant medical creams, intensive skin moisturization, eye drops, and specialized long-term treatment. She will also need reconstructive surgeries to prevent further damage to her body. Her family came to us with one hope: that someone would finally help Shahd continue her treatment and obtain a medical referral to receive care outside Gaza. This is what the Medical Campaign exists for. These are the lives your support touches. Shahd’s story is just one example of the urgent need for sustained medical care. Donate to the Medical Campaign and stand with Shahd on her journey toward healing. Other ways to donate include: (Paypal option, please make sure to add a message saying "Medical") (Venmo option, please make sure to add a message saying "Medical")

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