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I went down a rabbit hole reading #Reddit threads where physicians talk about their patients — especially those with ME/#CFS, #POTS, and complex autonomic disorders. Some of what’s being said goes beyond frustration — it reflects a deep lack of understanding and compassion.

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Dr Nathan Keiser

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27,755 görüntüleme • 4 ay önce •via X (Twitter)

Sağlık & İyilikHaberler & Politika#Reddit#CFS#POTS
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💬: You said that you always had anger in you. Where does that come from? 🐱: When I was younger, I guess I had a bit of an inferiority complex. As well as some frustration with society in general, of course. I think it was some combination of those things.
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💬: You said that you always had anger in you. Where does that come from? 🐱: When I was younger, I guess I had a bit of an inferiority complex. As well as some frustration with society in general, of course. I think it was some combination of those things.

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Is it bad that if they made a whole show animated in this style I'd watch it bcs man this goes hard af (I went down a rabbit hole of these videos lmao)
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Adding labels so that they won't overlap to diagrams must be some form of art in its own. Now, I must sit in a corner and repeat to myself, "I won't go down that rabbit hole..." "I won't go down that rabbit hole..." "I won't go down that rabbit hole..."
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"Most of the people I've seen with #MECFS are so much sicker than my cancer patients." Dr. Fridbjörn Sigurdsson, a former medical oncologist now focused on ME/CFS, speaking at the 2025 Invest in ME conference. Research indicates that for many, severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) can cause a lower quality of life, greater functional impairment, and more daily disruption than many cancers or multiple sclerosis. Patients with ME/CFS often report being bedbound, experiencing severe pain, and having little to no available treatment or path to remission. Key Findings on ME/CFS Severity: Quality of Life: Studies have shown that people with ME/CFS have lower quality of life scores than those with various cancers, stroke, or heart attacks. Daily Functioning: Approximately 25% of people with ME/CFS are severely affected, often housebound or bedbound. Comparison to Cancer: While cancer treatments are intense, they often have a defined endpoint, whereas ME/CFS is frequently a long-term, disabling, and ongoing condition with limited treatment options. Impact on Life: The illness can be so debilitating that it leads to a total loss of ability to work, socialize, or perform basic daily tasks like washing or eating. Severe Symptoms: In severe cases, patients may require tube feeding and live in darkness due to light and sound sensitivity. While cancer remains a highly fatal disease, the chronic, unpredictable, and unsupported nature of ME/CFS leads to extreme, long-term impairment that some sufferers and experts describe as sometimes feeling "worse" due to the lack of effective, universally available treatments

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This goes too deep down the rabbit hole
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We have produced a short film about #MECFS patients' prejudices. The film shows artistically how the disease isolates patients by breaking even their closest bonds through a lack of understanding from friends, partners, and relatives. Director: Béla Baptiste #WorldMEDay

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I’m down a rabbit hole with these types of videos all over TikTok 😂 I love it!!
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I’m down a rabbit hole with these types of videos all over TikTok 😂 I love it!!

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