PLEASE HELP & R/T Many will know my little Daisy had a kidney transplant recently, that ultimately saved her life. Our battle continues. Amber, the 3rd born of our triplet daughters has been on dialysis over 4 years. The last couple of weeks have knocked us sideways. 🧵 cont…

It looks like dialysis is becoming more difficult to achieve. We have been searching for a living (altruistic) donor. We’ve not yet found one. Amber’s form of #CKD is very rare. As a result her kidney needs to come from a living donor, (Cont…)

as post transplant she will need over 2 months of intensive treatment, including an immune suppressing targeting cancer drug. Weeks and weeks of plasmapheresis therapy. All on top of the transplant and aftercare itself. It will be a living hell. (Cont…)

I know this as I’ve already been through it with her sister Daisy. But I’m also lucky enough to watch Daisy skip off to school each morning. I don’t have to attach her to a machine for 12 hours every day just so we can have a tomorrow like I used to, and like I do with Amber…

We want a tomorrow. We want a next week, and a next year. Amber is is nearly 11. As a family we have never talked about next year. We talk about next month when the girls are doing well. Most often we talk about the couple of weeks in between hospital visits.

Because that’s the timeline we are afforded. At night time we talk about tomorrow. Because that’s why we attach Amber to a machine. That’s why she has injections and fists full of tablets every night. For a tomorrow. Cont…

Please Retweet this. If I don’t know you and we’ve never spoken on here, please share. It might be one of your followers or friends who comes forward. I can phone, private msg, email, anyone who wants to know more. Thank you everyone 💜💜💜

I can’t even begin to imagine what you’re all going through and only wish I was in a position to help, so sorry I’m not

You always follow our story and send lovely messages and warmth to our family. Believe me when I say you do help. 💜💙💜

I'm sorry Amber is going through this. Dialysis is hard at any age but particularly for those so young. Sending positive vibes to you all🙏❤️

Thank you Nick. It’s horrible watching them have to fight every day. It’s not a part of parenting you sign up for. We will fight everyday. ✌🏼💜