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Speaking about Jamie & discussing treatment which is being held back from boys in Scotland - We must keep putting pressure on to get access to children - Denying children access to treatment is a failure of the system.
22,690 views • 1 year ago •via X (Twitter)
5 Comments

Well done Jamie. Keep fighting on. Lots of people behind you. Kerr is no longer eligible as he recently broke his femur and hip so doesn’t meet the ambulatory requirements. But had he been given this when it was approved, he would have been eligible. So frustrating ☹️

Lisa that is absolutely heartbreaking , do you mind me sharing this ? I hope that this gets full approval ASAP for kids like Kerr , The system is letting us all down 😢

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Thanks Angie had plenty more I could of said


