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We do not understand emergent systems. Zero optimizer, reward, fitness function or training; only thermodynamics, time and death. Pure darwinism. Yet diverse, complex, co-op, life-like systems emerge. Every time. We must research emergence. We are missing something big. 1/N

41,965 次观看 • 19 天前 •via X (Twitter)

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Some of the incredible ladies from the Brighton & Hove secondary sisters group I co founded, have made this short plea to the government. We are here. We are alive. Please see us. On 5 February, Parliament will debate how people living with secondary (metastatic) breast cancer are treated in this country. For too long, we have been invisible. We are not rare. Metastatic breast cancer is the biggest killer of women between 35-64. We are not statistics that only appear once we’ve died. We are tens of thousands of people living, right now, with incurable cancer. Yet we are still only counted at death, not while we are living with complex needs, ongoing treatment, uncertainty, pain and fear. That invisibility shapes policy, funding, research priorities, and care, and it leaves us behind. We are asking for something simple, but transformative. Count us while we are alive. Collect meaningful, accurate data on how many of us there are, how we live, and what we need. Use that data to inform research, services, workforce planning, and support. Without this, we remain an afterthought. Without this, our experiences are dismissed. Without this, decisions are made about us, without us. We are mothers, daughters, partners, friends, professionals. We are living with terminal illness, but we are still living. Our time matters. Our quality of life matters. Our voices matter. This debate is a chance to finally acknowledge us, to stop erasing us, and to build systems that reflect reality, not silence. We desperately hope that the debate at Parliament led by Clive Jones and Mary Foy, will change how Secondary, Metastatic stage 4 cancer patients are treated. Please listen. Please act. Please count us. We have been invisible for too long #MetastaticBreastCancer #SecondaryBreastCancer #BreastCancer

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104,382 次观看 • 4 个月前