Anil van der Zee ©
@AnilvanderZee • 10,524 subscribers
Former professional ballet dancer | Bed- and wheelchair bound M.E. patient | Using ✖️ to raise awareness for #pwME | #IACI #art2cureME #pwme #millionsmissing
Videos
Almost nine out of ten people with #LongCovid do not fully recover from their symptoms. They have to learn to live with them. This is shown in a study by researchers from Frisius MC and the UMCG in Groningen. For the study, 1,200 people were followed over the past three years.
Anil van der Zee ©11,658 Aufrufe • vor 4 Tagen
1) Professor Prof. Akiko Iwasaki about Long-Covid being a functional disorder: "What we're saying is that #LongCovid at least, what we're able to already obtain data from patients is that we can explain 94% with accuracy, 94% accuracy long COVID just by looking at the
Anil van der Zee ©383,080 Aufrufe • vor 3 Jahren
1) This video shows a unique care unit in Norway called Røysumtunet for people with #severeME & very severe ME. It is one of the only places where the sickest patients can receive specialised care. We need this everywhere!! #pwme #myalgicE #millionsmissing #severeME
Anil van der Zee ©27,160 Aufrufe • vor 4 Monaten
Beautiful and emotional message on national television during Knappe Koppen (Bright Minds) from two young #LongCovid patients and their parents to Dr. Rob Wüst, thanking him for his incredible work to uncover the biological cause of PEM in Long Covid (or Long Covid ME) & #pwME.
Anil van der Zee ©14,676 Aufrufe • vor 5 Monaten
A trailer of the documentary "Doctors as Patients" where five medical doctors open up about living with #IACC conditions like #pwME, #longCOVID & chronic #Lyme. I invite you to watch and share it far and wide. Their voices have even more urgent health issue since the pandemic.
Anil van der Zee ©33,320 Aufrufe • vor 1 Jahr
I like what Carmen Scheibenbogen does here. Don't present ME, LC, PAIS/IACC as "complex" or complicated! "if only we would finally understand how it works, and they don’t understand it—not because it’s so complicated, but because it has hardly been researched so far.” ENG subs 👇
Anil van der Zee ©27,025 Aufrufe • vor 1 Jahr
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