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Ellie Lexie

@ellielexx • 9,847 subscribers

Writer, Editor, Podcaster Founder & Trustee of Billy’s Battalion (reg charity no. 1213415) 🇬🇧 Fighting DIPG brain cancer for Billy the Brave ❤️‍🩹

Shorts

Dearest Billy, Day 130. How many more "I love you's" will I hear? A year on, I'm not even sure. We had 12 days left, so it wasn't many. You could barely speak, and you'd lost so much of your mobility. You could no longer walk or sit yourself up in bed. 🧵

Dearest Billy, Day 130. How many more "I love you's" will I hear? A year on, I'm not even sure. We had 12 days left, so it wasn't many. You could barely speak, and you'd lost so much of your mobility. You could no longer walk or sit yourself up in bed. 🧵

26,676 Aufrufe

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Please share my son’s story. He’s four and suffering from a terminal brain tumour. Help us raise awareness of DIPG and get him on a potentially life saving trial:

Please share my son’s story. He’s four and suffering from a terminal brain tumour. Help us raise awareness of DIPG and get him on a potentially life saving trial:

1,059,068 Aufrufe • vor 2 Jahren

I bought you a Christmas present. I wrapped it up, and I put it under the tree with all the other gifts. But when Christmas Day came and went, it was still there, the last little gift left. Alone. I didn’t know what to do with it, so I left it there... until yesterday.

I bought you a Christmas present. I wrapped it up, and I put it under the tree with all the other gifts. But when Christmas Day came and went, it was still there, the last little gift left. Alone. I didn’t know what to do with it, so I left it there... until yesterday.

171,873 Aufrufe • vor 8 Monaten

Just one month ago… 💔

Just one month ago… 💔

114,892 Aufrufe • vor 2 Jahren

Monday, 26th February, 2024. Trigger warning: This is a really hard watch. Dearest Billy, It’s National Bereaved Parents Day today. 34 days before you died, you asked me to help you create a ‘Day in the Life’ video at The Royal Marsden, 🧵

Monday, 26th February, 2024. Trigger warning: This is a really hard watch. Dearest Billy, It’s National Bereaved Parents Day today. 34 days before you died, you asked me to help you create a ‘Day in the Life’ video at The Royal Marsden, 🧵

35,746 Aufrufe • vor 1 Jahr

I filmed this video on 15th March 2023. Exactly one month before your fourth birthday and a year and 16 days before your death. Of course, we didn’t know it then, but we would have just 382 days left. That’s no time at all, when so many of those days were filled with anguish 🧵

I filmed this video on 15th March 2023. Exactly one month before your fourth birthday and a year and 16 days before your death. Of course, we didn’t know it then, but we would have just 382 days left. That’s no time at all, when so many of those days were filled with anguish 🧵

37,476 Aufrufe • vor 1 Jahr

My mum recently changed her profile picture to the cover photo of this video, so I had to dig out the original and post it. Billy. The cutest little boy ❤️‍🩹 #dipg #childloss

33,418 Aufrufe • vor 1 Jahr

DIPG means no more chances to tell each other ‘I love you.’ Billy, through slurred speech and a weakness in his face, and me, through puffy, tear-stricken eyes and a broken heart. 🧵

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DIPG means no more chances to tell each other ‘I love you.’ Billy, through slurred speech and a weakness in his face, and me, through puffy, tear-stricken eyes and a broken heart. 🧵

27,818 Aufrufe • vor 1 Jahr

The day I asked my friends to come over and watch me iron. Billy, you’ll get this, you’ll love this. ❤️ For Billy, who died a year ago in the morning. The biggest Queen fan. Tomorrow, 11.05 BST, join, play Bohemian Rhapsody for Billy. If you’re in, comment ‘yes’ with a flag.

The day I asked my friends to come over and watch me iron. Billy, you’ll get this, you’ll love this. ❤️ For Billy, who died a year ago in the morning. The biggest Queen fan. Tomorrow, 11.05 BST, join, play Bohemian Rhapsody for Billy. If you’re in, comment ‘yes’ with a flag.

24,325 Aufrufe • vor 1 Jahr

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