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Ellie Lexie

@ellielexx • 9,652 subscribers

Editor at My Baba | Writer, Podcaster. Fighting DIPG brain cancer: Founder, Billy’s Battalion (reg charity no. 1213415) in memory of Billy the Brave 🇬🇧

Shorts

Dearest Billy, Day 130. How many more "I love you's" will I hear? A year on, I'm not even sure. We had 12 days left, so it wasn't many. You could barely speak, and you'd lost so much of your mobility. You could no longer walk or sit yourself up in bed. 🧵

Dearest Billy, Day 130. How many more "I love you's" will I hear? A year on, I'm not even sure. We had 12 days left, so it wasn't many. You could barely speak, and you'd lost so much of your mobility. You could no longer walk or sit yourself up in bed. 🧵

26,430 次观看

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Please share my son’s story. He’s four and suffering from a terminal brain tumour. Help us raise awareness of DIPG and get him on a potentially life saving trial:

Please share my son’s story. He’s four and suffering from a terminal brain tumour. Help us raise awareness of DIPG and get him on a potentially life saving trial:

1,058,940 次观看 • 2 年前

Just one month ago… 💔

Just one month ago… 💔

114,852 次观看 • 2 年前

Monday, 26th February, 2024. Trigger warning: This is a really hard watch. Dearest Billy, It’s National Bereaved Parents Day today. 34 days before you died, you asked me to help you create a ‘Day in the Life’ video at The Royal Marsden, 🧵

Monday, 26th February, 2024. Trigger warning: This is a really hard watch. Dearest Billy, It’s National Bereaved Parents Day today. 34 days before you died, you asked me to help you create a ‘Day in the Life’ video at The Royal Marsden, 🧵

35,746 次观看 • 11 个月前

I filmed this video on 15th March 2023. Exactly one month before your fourth birthday and a year and 16 days before your death. Of course, we didn’t know it then, but we would have just 382 days left. That’s no time at all, when so many of those days were filled with anguish 🧵

I filmed this video on 15th March 2023. Exactly one month before your fourth birthday and a year and 16 days before your death. Of course, we didn’t know it then, but we would have just 382 days left. That’s no time at all, when so many of those days were filled with anguish 🧵

37,476 次观看 • 1 年前

My mum recently changed her profile picture to the cover photo of this video, so I had to dig out the original and post it. Billy. The cutest little boy ❤️‍🩹 #dipg #childloss

33,415 次观看 • 1 年前

DIPG means no more chances to tell each other ‘I love you.’ Billy, through slurred speech and a weakness in his face, and me, through puffy, tear-stricken eyes and a broken heart. 🧵

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DIPG means no more chances to tell each other ‘I love you.’ Billy, through slurred speech and a weakness in his face, and me, through puffy, tear-stricken eyes and a broken heart. 🧵

27,786 次观看 • 1 年前

The day I asked my friends to come over and watch me iron. Billy, you’ll get this, you’ll love this. ❤️ For Billy, who died a year ago in the morning. The biggest Queen fan. Tomorrow, 11.05 BST, join, play Bohemian Rhapsody for Billy. If you’re in, comment ‘yes’ with a flag.

The day I asked my friends to come over and watch me iron. Billy, you’ll get this, you’ll love this. ❤️ For Billy, who died a year ago in the morning. The biggest Queen fan. Tomorrow, 11.05 BST, join, play Bohemian Rhapsody for Billy. If you’re in, comment ‘yes’ with a flag.

24,277 次观看 • 1 年前

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