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Gillian Sherratt

@GillSherratt23 • 4,483 subscribers

#JusticeForHarvey Disability Campaign Coordinator for Sinn Féin 🇮🇪 Family Carer and Advocate 💚

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An email sent to An Taoiseach Simon Harris TD this morning. I’ll keep you all posted if I hear back ❤️ Hi Simon, I am writing to you as an incredibly concerned parent of an 8.5 year old boy, Harvey. Harvey has Spina bifida and scoliosis which in itself is challenging, but when those conditions are coupled with a lack of access to therapy, a hospital that is potentially misappropriating funds, and incredibly long wait lists for urgent and life changing surgeries, then it becomes impossible to adequately care for your child. Harvey had an Xray in January 2024 that showed his scoliosis curve is at 110°, if you have read in to scoliosis then I am sure you are aware how this is at a point where it is detrimental to his health and quality of life. Harvey was under Connor Green and was listed for urgent surgery in February 2022 after repeated pneumonia infections, 30 months later he is still only on the surgical list under Connor Green as he does not have a surgeon willing to operate. The task force you hold in such high regard has not made contact with my family, nor is there any details online of how to contact them to enquire as to when your child will finally be treated. You continually tell families like ours that you care, and you have been promising to fix this since 2017. 2017 was the year we were told that Harvey’s ribs were crushing his lungs and controlling his scoliosis was life and death. Here we are in 2024 and nothing has changed except we now have a surgeon under investigation, longer wait lists, more children waiting, a still not complete hospital, and funds not being spent as intended and no answers yet as to where the money *we* fought for went. You say you care but your actions have left us feeling anything but. We as a family also have a child facing open heart surgery next month and this is just more stress and concern that we do not need. Another summer has just passed and Harvey has spent the majority in his room, often needing to go back in to bed because he is in so much pain. Is that the life you think the children of Ireland deserve? Would you accept that if it was your own child? Can you imagine being told your child has a potentially life threatening condition but that it will be years before it would be treated? We need actual action, not more empty promises. You need to engage with all advocacy groups, not just those that are currently working with the task force. There are very valid reasons why the other groups have chosen to not engage and they need to be heard. We need contact details and open dialogue with the task force so that we can actually feel its existence. We need answers as to where the funding for scoliosis and spina bifida services went. Most of all, these children need to get their quality of life back before their whole childhood passes. I look forward to hearing from you. Kind Regards. Gillian Sherratt

An email sent to An Taoiseach Simon Harris TD this morning. I’ll keep you all posted if I hear back ❤️ Hi Simon, I am writing to you as an incredibly concerned parent of an 8.5 year old boy, Harvey. Harvey has Spina bifida and scoliosis which in itself is challenging, but when those conditions are coupled with a lack of access to therapy, a hospital that is potentially misappropriating funds, and incredibly long wait lists for urgent and life changing surgeries, then it becomes impossible to adequately care for your child. Harvey had an Xray in January 2024 that showed his scoliosis curve is at 110°, if you have read in to scoliosis then I am sure you are aware how this is at a point where it is detrimental to his health and quality of life. Harvey was under Connor Green and was listed for urgent surgery in February 2022 after repeated pneumonia infections, 30 months later he is still only on the surgical list under Connor Green as he does not have a surgeon willing to operate. The task force you hold in such high regard has not made contact with my family, nor is there any details online of how to contact them to enquire as to when your child will finally be treated. You continually tell families like ours that you care, and you have been promising to fix this since 2017. 2017 was the year we were told that Harvey’s ribs were crushing his lungs and controlling his scoliosis was life and death. Here we are in 2024 and nothing has changed except we now have a surgeon under investigation, longer wait lists, more children waiting, a still not complete hospital, and funds not being spent as intended and no answers yet as to where the money we fought for went. You say you care but your actions have left us feeling anything but. We as a family also have a child facing open heart surgery next month and this is just more stress and concern that we do not need. Another summer has just passed and Harvey has spent the majority in his room, often needing to go back in to bed because he is in so much pain. Is that the life you think the children of Ireland deserve? Would you accept that if it was your own child? Can you imagine being told your child has a potentially life threatening condition but that it will be years before it would be treated? We need actual action, not more empty promises. You need to engage with all advocacy groups, not just those that are currently working with the task force. There are very valid reasons why the other groups have chosen to not engage and they need to be heard. We need contact details and open dialogue with the task force so that we can actually feel its existence. We need answers as to where the funding for scoliosis and spina bifida services went. Most of all, these children need to get their quality of life back before their whole childhood passes. I look forward to hearing from you. Kind Regards. Gillian Sherratt

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Imagine this. Putting your child’s image and health background up on to a public website along with around 80 other children in similar situations in a fight to get funding allocated to help ease their pain, and get them the treatment each and every one of them deserve. Imagine the relief you felt when the €19million was approved and you finally felt like things would improve. Imagine then, finding out that Children's Health Ireland decided your children weren’t worth it. Despite that group of children and parents fighting to get the money, they decided they would just spend it as they see fit. After all this time we finally have proof that our children are being neglected by the state. Our children are seen as less deserving and less important. Imagine when these children grow up-to then learn that this is why they were in so much pain through childhood. Then @DonnellyStephen actually trying to say he didn’t know, it’s such an absolute slap in the face. The very bloody least he could do for these kids now is hold his hands up, and admit he has failed them. Admit he turned a blind eye until it was brought to public attention. Shame on each and every single person that had a hand in this. Absolutely vile human beings. #OwnYourBloodyMistakes #backus #scoliosis Spina Bifida & Hydrocephalus Paeds Advocacy#backus The Scoliosis Advocacy Network #BackUs Úna Keightley Dr Tom Clonan CM Haughey Solicitors Ruth Coppinger

Imagine this. Putting your child’s image and health background up on to a public website along with around 80 other children in similar situations in a fight to get funding allocated to help ease their pain, and get them the treatment each and every one of them deserve. Imagine the relief you felt when the €19million was approved and you finally felt like things would improve. Imagine then, finding out that Children's Health Ireland decided your children weren’t worth it. Despite that group of children and parents fighting to get the money, they decided they would just spend it as they see fit. After all this time we finally have proof that our children are being neglected by the state. Our children are seen as less deserving and less important. Imagine when these children grow up-to then learn that this is why they were in so much pain through childhood. Then @DonnellyStephen actually trying to say he didn’t know, it’s such an absolute slap in the face. The very bloody least he could do for these kids now is hold his hands up, and admit he has failed them. Admit he turned a blind eye until it was brought to public attention. Shame on each and every single person that had a hand in this. Absolutely vile human beings. #OwnYourBloodyMistakes #backus #scoliosis Spina Bifida & Hydrocephalus Paeds Advocacy#backus The Scoliosis Advocacy Network #BackUs Úna Keightley Dr Tom Clonan CM Haughey Solicitors Ruth Coppinger

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Second time in less than 48 hours that these lads have been at our front door so heads up to anyone in Clondalkin

Second time in less than 48 hours that these lads have been at our front door so heads up to anyone in Clondalkin

Gillian Sherratt

169,051 Aufrufe • vor 2 Monaten

So things have gone from bad to worse recently for Harvey unfortunately. While we have been campaigning, while we have all been sharing his story, while we have been watching footage of Harvey struggling to breathe, while we have been watching him screaming in pain, Children's Health Ireland took it upon themselves to remove Harvey from the waiting list. Harvey was on the list since February 2022 and had been waiting over two years, and he was removed without our consent, or even us being informed. The only reason we even know is because I queried his status again. Where else in the world would you see a child with a curvature well over 100° actually taken *off* a surgical list. Spending years sitting on that list is bad enough but to go ahead and actually remove that little glimmer of hope we had is just inexcusable. They had no plan in place for Harvey, no scheduled follow up appointments, just him kicked off the list without even a curtesy call to let us know. As far as I can tell they gave zero consideration to his wellbeing in making that decision. We have been spending so much time trying to decide if we should put this out publicly but you have all been so supportive of us, and all the children waiting so far and it just felt too important to not share. Your support helps us fight for better, because we all know these children, and the children that will come after them deserve better. From our own experience, this new task force is nothing but a media spin between CHI and Simon Harris TD to make it seem like they’re making things better but this is the reality. Not only have things not got better for most of us, in some cases they’ve somehow got worse. They say that they’re improving communications with parents but I have asked David Moore (the lead of the task force) repeatedly for information like when Harvey was removed from the list and he is actively evading answering. Don’t let the media spin fool you, these children are continuing to be failed and CHI and this government are not only allowing it, they’re causing it.

So things have gone from bad to worse recently for Harvey unfortunately. While we have been campaigning, while we have all been sharing his story, while we have been watching footage of Harvey struggling to breathe, while we have been watching him screaming in pain, Children's Health Ireland took it upon themselves to remove Harvey from the waiting list. Harvey was on the list since February 2022 and had been waiting over two years, and he was removed without our consent, or even us being informed. The only reason we even know is because I queried his status again. Where else in the world would you see a child with a curvature well over 100° actually taken off a surgical list. Spending years sitting on that list is bad enough but to go ahead and actually remove that little glimmer of hope we had is just inexcusable. They had no plan in place for Harvey, no scheduled follow up appointments, just him kicked off the list without even a curtesy call to let us know. As far as I can tell they gave zero consideration to his wellbeing in making that decision. We have been spending so much time trying to decide if we should put this out publicly but you have all been so supportive of us, and all the children waiting so far and it just felt too important to not share. Your support helps us fight for better, because we all know these children, and the children that will come after them deserve better. From our own experience, this new task force is nothing but a media spin between CHI and Simon Harris TD to make it seem like they’re making things better but this is the reality. Not only have things not got better for most of us, in some cases they’ve somehow got worse. They say that they’re improving communications with parents but I have asked David Moore (the lead of the task force) repeatedly for information like when Harvey was removed from the list and he is actively evading answering. Don’t let the media spin fool you, these children are continuing to be failed and CHI and this government are not only allowing it, they’re causing it.

Gillian Sherratt

439,832 Aufrufe • vor 1 Jahr

I don’t understand how there isn’t more outrage. How many more lives will have to be lost before the system admits it’s failing? How many more people will be forced to live a life of pain and discomfort? It’s simply shameful

I don’t understand how there isn’t more outrage. How many more lives will have to be lost before the system admits it’s failing? How many more people will be forced to live a life of pain and discomfort? It’s simply shameful

Gillian Sherratt

16,240 Aufrufe • vor 3 Monaten

It’s almost like we have been shouting that we were worried this would happen #JusticeForHarvey Simon Harris TD Children's Health Ireland Micheál Martin Stephen Morrison Spina Bifida & Hydrocephalus Paeds Advocacy#backus The Scoliosis Advocacy Network #BackUs

It’s almost like we have been shouting that we were worried this would happen #JusticeForHarvey Simon Harris TD Children's Health Ireland Micheál Martin Stephen Morrison Spina Bifida & Hydrocephalus Paeds Advocacy#backus The Scoliosis Advocacy Network #BackUs

Gillian Sherratt

39,812 Aufrufe • vor 11 Monaten

Addressing some of the comments and questions I’ve seen this morning in relation to the Statutory Public Inquiry. Also just to say a massive thank you to Spina Bifida & Hydrocephalus Paeds Advocacy#backus and The Scoliosis Advocacy Network #BackUs for their tireless and unrelenting advocacy for our children and all the opposition parties that have amplified our voices and helped us in our fight ❤️#JusticeForHarvey #StatutoryInquirySecured #NoChildWaiting

Addressing some of the comments and questions I’ve seen this morning in relation to the Statutory Public Inquiry. Also just to say a massive thank you to Spina Bifida & Hydrocephalus Paeds Advocacy#backus and The Scoliosis Advocacy Network #BackUs for their tireless and unrelenting advocacy for our children and all the opposition parties that have amplified our voices and helped us in our fight ❤️#JusticeForHarvey #StatutoryInquirySecured #NoChildWaiting

Gillian Sherratt

16,282 Aufrufe • vor 7 Monaten

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