Professor Richard Scolyer AO
@ProfRAScolyer • 22,544 subscribers
Surg Pathologist RPAH. Prof @Sydney_Uni. 2024 Jt Australian of Year. Editor @WHO Skin (4th ed). Ex @AJCCancer VC Mel Expert Panel. All posts/comments personal.
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Still no sign of recurrence of my glioblastoma on the latest MRI scan. I couldn’t be happier!! It’s 18 months today since my brain tumour came to light. Thank you to all those who have been part of the medical & scientific teams involved in my treatment and care and scientific analysis of my tumour. Sydney Local Health District University of Sydney Allen & Unwin Garry Maddox AusoftheYearAwards #Brainstorm
Professor Richard Scolyer AO181,883 Aufrufe • vor 1 Jahr
Last 3 wks toughest yet. Since my #glioblastoma treated in June 2023, having freq partial seizures (usually cold peripherally & nauseated) (up to 10x/day). Difficult to manage. 3 times loss of consciousness. No seizures since latest ⬆️ antiepiletics but vv tired & lethargic.
Professor Richard Scolyer AO90,370 Aufrufe • vor 2 Jahren
Next #brain #MRI scan: Friday 27th September 2024 (>16 months post #GBM coming to light in #Poland in May 2023). MRI looking for: 1. #glioblastoma recurrence 2. #aneurysm stability 3. Treatment effects How am I travelling/feeling: ok but more anxious this week (scanxiety worse than ever)! Fingers crossed🤞scan ok! AusoftheYearAwards Sydney Swans
Professor Richard Scolyer AO72,572 Aufrufe • vor 1 Jahr
I’ve had #neoadjuvant #immunotherapy for my #glioblastoma (G4, IDH WT, multiple adverse molec prog features) & tomorrow I’m heading to RPAH/Sydney Local Health District for definitive resection! Feeling good & most grateful for incred support from amazing family, friends, colleagues. Professor Georgina Long AO (Bluesky @gvlongphdmd)
Professor Richard Scolyer AO103,224 Aufrufe • vor 3 Jahren
This week, I’ll be having another MRI brain scan looking for any evidence of recurrence of my brain cancer (as well as for treatment side effects and stability of my cerebral artery aneurysm). Despite a busy and incredibly fun week at the Australian of the Year events, I am as nervous as ever! So called scanxiety lives on! Thanks everyone for your support and kindness. AusoftheYearAwards Sydney Local Health District University of Sydney #glioblastoma
Professor Richard Scolyer AO59,389 Aufrufe • vor 1 Jahr
Here is an update about my health and some info about a fun event to participate in, happening next month: As many of you will know, Tour de Cure is an organisation very close to my heart. On Sunday 9th November they will be hosting their inaugural Step Out for Cancer event in Sydney. This event is in support of the new Minderoo Children’s Comprehensive Cancer Centre and, as well as raising vital funds, it’s also about celebrating the opening of a world class facility that will help save the lives of children with cancer. The event has a 6km family-friendly walk, going pitch side and behind-the-scenes at Allianz Stadium and the SCG; and 5km & 10km run options housed at Randwick Racecourse with exclusive access to areas closed to the public on race day. Your favourite teams - Sydney FC, Sydney Sixers, GWS Giants, Roosters and Rabbitohs – will be activating along the route and there will be a post event finale with music from Furnace and the Fundamentals and The Voice finalists, as well as entertainment for the kids. For more details and to register you can go to - Step Out For Cancer (find the link in my bio) – I hope to see you there on the day. @tourdecureaus
Professor Richard Scolyer AO29,000 Aufrufe • vor 9 Monaten
Today is surgery day. It’s an uncertain path, but one I’m travelling with support & guidance from family, friends & colleagues worldwide. #braincancer #glioblastoma Melanoma Institute Australia Sydney Health Sydney Local Health District Charles Perkins Centre
Professor Richard Scolyer AO75,643 Aufrufe • vor 3 Jahren
Next brain MRI scan this Friday looking 4 recurrent #glioblastoma &/or treatment effects. I don’t think high risk of major change yet but as scan creeps up closer I’m a little anxious. I understand this common in cancer patients (“scanxiety”). Here’s my take & experience to date!
Professor Richard Scolyer AO62,560 Aufrufe • vor 2 Jahren
Here’s an update on the treatment journey 4 my #glioblastoma (unfortunately is in poorest prognosis subgroup & has many extra poor prognosis molecular features)! I’m overwhelmed & v thankful for incredible support I’m receiving both medically & across the community! Sydney Local Health District
Professor Richard Scolyer AO67,377 Aufrufe • vor 3 Jahren
How am I travelling? Pretty well. A few minor medical hiccups but nothing too serious. Recent challenges: antiepileptics, prolonged URTI/cough, viscid mucus secretions, semi-blocked ears & dry skin the main ones together with some lack of energy. Some minor abnormalities in blood tests. I have a great team of specialists looking after all aspects of my care! Thank you all and your wider teams very much for all the support & assistance you are giving me to fight this wretched supposedly incurable brain cancer #glioblastoma with world 1st #neoadjuvant combination #immunotherapy & a personalised anticancer vaccine led by Professor Georgina Long AO (Bluesky @gvlongphdmd). Professor Georgina Long AO (Bluesky @gvlongphdmd) & I look forward to seeing many people at Melanoma March at Iron Cove Bay in Sydney this Sunday at 7am to either run/jog the 7k Bay Run or walk 4K. Please register at (onsite rego unavailable). Melanoma Institute Australia Sydney Local Health District University of Sydney
Professor Richard Scolyer AO54,864 Aufrufe • vor 2 Jahren
I’m abit nervous re scans next week. Whatever revealed, I’m so proud of invaluable world 1st scientific data from my worst subtype brain cancer. Only possible because had riskier open craniotomy 1st then combi immunotherapy b4 major surgery. Next step: clinical trial 2 c if helps
Professor Richard Scolyer AO53,182 Aufrufe • vor 2 Jahren
Best wishes 4 fab Festive Season. It’s different & more emotional 4 me than ever b4 but still enjoying it. Fingers crossed with world 1st #glioblastoma treatments I’ll b here next year & treatments/outcomes improve 4 1st time in 18 years! That would b gift of a lifetime!
Professor Richard Scolyer AO40,552 Aufrufe • vor 2 Jahren
On A Current Affair on Monday night I share my story. As you know, I hope that by documenting my personal journey with #glioblastoma, I can contribute to research. #9ACA Watch live at 7pm. Sydney Health Charles Perkins Centre Sydney Local Health District #AllyLangdon
Professor Richard Scolyer AO39,995 Aufrufe • vor 3 Jahren
I’m blown away & incredibly proud to hear that, based on world 1st scientific data from unique & riskier open craniotomy biopsies taken pre/post neoadjuv combi #immunotherapy for my #glioblastoma (GB), biopharma companies r looking to expand drug development programs into GB
Professor Richard Scolyer AO37,189 Aufrufe • vor 3 Jahren