#glioblastoma
Last 3 wks toughest yet. Since my #glioblastoma treated in June 2023, having freq partial seizures (usually cold peripherally & nauseated) (up to 10x/day). Difficult to manage. 3 times loss of consciousness. No seizures since latest ⬆️ antiepiletics but vv tired & lethargic.
Professor Richard Scolyer AO90,370 Aufrufe • vor 2 Jahren
Next #brain #MRI scan: Friday 27th September 2024 (>16 months post #GBM coming to light in #Poland in May 2023). MRI looking for: 1. #glioblastoma recurrence 2. #aneurysm stability 3. Treatment effects How am I travelling/feeling: ok but more anxious this week (scanxiety worse than ever)! Fingers crossed🤞scan ok! AusoftheYearAwards Sydney Swans
Professor Richard Scolyer AO72,572 Aufrufe • vor 1 Jahr
I’ve had #neoadjuvant #immunotherapy for my #glioblastoma (G4, IDH WT, multiple adverse molec prog features) & tomorrow I’m heading to RPAH/Sydney Local Health District for definitive resection! Feeling good & most grateful for incred support from amazing family, friends, colleagues. Professor Georgina Long AO (Bluesky @gvlongphdmd)
Professor Richard Scolyer AO103,224 Aufrufe • vor 3 Jahren
Today is surgery day. It’s an uncertain path, but one I’m travelling with support & guidance from family, friends & colleagues worldwide. #braincancer #glioblastoma Melanoma Institute Australia Sydney Health Sydney Local Health District Charles Perkins Centre
Professor Richard Scolyer AO75,643 Aufrufe • vor 3 Jahren
Next brain MRI scan this Friday looking 4 recurrent #glioblastoma &/or treatment effects. I don’t think high risk of major change yet but as scan creeps up closer I’m a little anxious. I understand this common in cancer patients (“scanxiety”). Here’s my take & experience to date!
Professor Richard Scolyer AO62,560 Aufrufe • vor 2 Jahren
Here’s an update on the treatment journey 4 my #glioblastoma (unfortunately is in poorest prognosis subgroup & has many extra poor prognosis molecular features)! I’m overwhelmed & v thankful for incredible support I’m receiving both medically & across the community! Sydney Local Health District
Professor Richard Scolyer AO67,377 Aufrufe • vor 3 Jahren
Best wishes 4 fab Festive Season. It’s different & more emotional 4 me than ever b4 but still enjoying it. Fingers crossed with world 1st #glioblastoma treatments I’ll b here next year & treatments/outcomes improve 4 1st time in 18 years! That would b gift of a lifetime!
Professor Richard Scolyer AO40,552 Aufrufe • vor 2 Jahren
On A Current Affair on Monday night I share my story. As you know, I hope that by documenting my personal journey with #glioblastoma, I can contribute to research. #9ACA Watch live at 7pm. Sydney Health Charles Perkins Centre Sydney Local Health District #AllyLangdon
Professor Richard Scolyer AO39,995 Aufrufe • vor 3 Jahren
I’m blown away & incredibly proud to hear that, based on world 1st scientific data from unique & riskier open craniotomy biopsies taken pre/post neoadjuv combi #immunotherapy for my #glioblastoma (GB), biopharma companies r looking to expand drug development programs into GB
Professor Richard Scolyer AO37,189 Aufrufe • vor 3 Jahren