An update from Pierre #SaveCarlasLife - the same nurse he was discussing yesterday effectively doubled down on her behaviour last night and refused to follow NICE guidelines on very severe #MEcfs 👇

Another NHS nurse who's in the wrong bloody job. She doesn't even need to understand ME to respect and support Carla, she just needs to show some humanity and compassion!

The poor girl is being physically tortured by the ignorance of this hospital. Staff should be making themselves aware of NICE Guidelines for M.E. There's a terrible lack of empathy.

My heart breaks for the family under so much strain and having to constantly battle with hospital staff to accept Carlas condition and care for her appropriately. This nurse and others whose ignorance & negligence is harming patients must be removed #NHS #SaveCarlasLife #MEcfs

Would this nurse speak loudly in the room of someone with meningitis sound sensitivity? If she can't speak quietly, she should be replaced.

I want to forward this on because it's something many ppl miss when raising a complaint: List on site isn't exclusive, have experience w/this. Note 'act quickly' on site. I sense racism/prejudice from nurse. Just my opinion based on 'wife' comment etc.

Nurse can't lower her voice? She's unable to whisper? Maybe she needs CBT? Desperate situation, I know many #pwME want to help. Thank you @TheChronicColab for everything you are doing to help Carla and her family xx

When will this end?

Pierre has my number. He has not called me back.

Bloody hell, have these medical staff never had a migraine or hangover where light and noise cause more pain. They need to stop being so bloody cruel and show some empathy for this poor young woman.