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#ME is a debilitating disease. I know my patients struggle in getting support because the research and evidence base data is scanty - but I hope using the NICE -Myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome: diagnosis and management - helps provide guidance of what you are entitled to on... show more

𝑫𝒓 𝑵𝒊𝒈𝒉𝒂𝒕 𝑨𝒓𝒊𝒇

33,901 subscribers

12,955 просмотров • 1 год назад •via X (Twitter)

Anya Rossi• Live Now

Private livecam show

Комментарии: 11

Фото профиля Naomi Harvey PhD #WearAMask

Naomi Harvey PhD #WearAMask1 год назад

Thank you Dr Nighat Arif 🩵 For any doctors or nurses you know who want to know more about it, I wrote this brief 600 word guide sign posting CPD resources on ME/CFS for healthcare professionals

Фото профиля Claim Climbers

Claim Climbers1 год назад

We help Veterans secure their benefits with Medical Evidence and Nexus Letters. Are you, or someone you know, working on a VA Disability claim? We can help!

Фото профиля Jo

Jo1 год назад

Keep talking about it to every Dr you meet. I’m tired of mentioning what I have to Drs and they either look disinterested, shrug or say they don’t know about it.

Фото профиля Rachel

Rachel1 год назад

Thank you for talking about ME today Dr 💙 keep shouting about it to colleagues please (I regularly meet GPs who know nothing / recommend graded ex therapy which is proven to harm)

Фото профиля Long Covid Advocacy 💙

Long Covid Advocacy 💙1 год назад

Thank you Dr Arif 💙 Referring to the NICE guidelines is so important.

Фото профиля K

K1 год назад

Thank you for flagging. Helpful & practical Clinical Care Guide came out from BHC (specialists in ME) a few days ago too...

Фото профиля Lucy

Lucy1 год назад

I got ill at 21, was diagnosed with ME at 22. I’m 49 now and I’ve never been given any treatment other than painkillers when I was 23. Oh, and one GP printed out a leaflet about the condition to give me when I was asking for help. 🤷🏻‍♀️

Фото профиля K

K1 год назад

Worth watching the award-winning short Animation Film (6 mins) that came out last year...

Фото профиля Elisabeth Klaar | Oak Tree Studio

Elisabeth Klaar | Oak Tree Studio1 год назад

Thanks so much! Really powerful when high profile doctors like you share the right guidelines like this! 🌟

Фото профиля Fiona

Fiona1 год назад

Also important to say there are lots of us who recover. After 14 years of illness, I did. There are many reasons to have hope 🌈

Фото профиля 𝑫𝒓 𝑵𝒊𝒈𝒉𝒂𝒕 𝑨𝒓𝒊𝒇

𝑫𝒓 𝑵𝒊𝒈𝒉𝒂𝒕 𝑨𝒓𝒊𝒇1 год назад

🥰yes - hence why I said it fluctuates

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ME, or Myalgic encephalomyelitis, is linked to your genetics, an early study by Decode ME has suggested. They’ve found eight areas of genetic code in people with ME are ‘significantly different’ to the DNA of people without the disease. The results still need to be reviewed, but the University of Edinburgh research team hope these results will pave the way for future research and the development of drugs.

ME, or Myalgic encephalomyelitis, is linked to your genetics, an early study by Decode ME has suggested. They’ve found eight areas of genetic code in people with ME are ‘significantly different’ to the DNA of people without the disease. The results still need to be reviewed, but the University of Edinburgh research team hope these results will pave the way for future research and the development of drugs.

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"Most of the people I've seen with #MECFS are so much sicker than my cancer patients." Dr. Fridbjörn Sigurdsson, a former medical oncologist now focused on ME/CFS, speaking at the 2025 Invest in ME conference. Research indicates that for many, severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) can cause a lower quality of life, greater functional impairment, and more daily disruption than many cancers or multiple sclerosis. Patients with ME/CFS often report being bedbound, experiencing severe pain, and having little to no available treatment or path to remission. Key Findings on ME/CFS Severity: Quality of Life: Studies have shown that people with ME/CFS have lower quality of life scores than those with various cancers, stroke, or heart attacks. Daily Functioning: Approximately 25% of people with ME/CFS are severely affected, often housebound or bedbound. Comparison to Cancer: While cancer treatments are intense, they often have a defined endpoint, whereas ME/CFS is frequently a long-term, disabling, and ongoing condition with limited treatment options. Impact on Life: The illness can be so debilitating that it leads to a total loss of ability to work, socialize, or perform basic daily tasks like washing or eating. Severe Symptoms: In severe cases, patients may require tube feeding and live in darkness due to light and sound sensitivity. While cancer remains a highly fatal disease, the chronic, unpredictable, and unsupported nature of ME/CFS leads to extreme, long-term impairment that some sufferers and experts describe as sometimes feeling "worse" due to the lack of effective, universally available treatments

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Your fans are the reflection of you. I kept this video as one my evidence when the time is right. Davido in his word: I called my fan base to fuck her IG up. This is enough evidence that all the death threats on my son and my life you told your fan base to do the same! And this is an evidence that you started this toxic attack on people on x.

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