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#ME is a debilitating disease. I know my patients struggle in getting support because the research and evidence base data is scanty - but I hope using the NICE -Myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome: diagnosis and management - helps provide guidance of what you are entitled to on... show more
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Thank you Dr Nighat Arif ๐ฉต For any doctors or nurses you know who want to know more about it, I wrote this brief 600 word guide sign posting CPD resources on ME/CFS for healthcare professionals

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Keep talking about it to every Dr you meet. Iโm tired of mentioning what I have to Drs and they either look disinterested, shrug or say they donโt know about it.

Thank you for talking about ME today Dr ๐ keep shouting about it to colleagues please (I regularly meet GPs who know nothing / recommend graded ex therapy which is proven to harm)

Thank you Dr Arif ๐ Referring to the NICE guidelines is so important.

Thank you for flagging. Helpful & practical Clinical Care Guide came out from BHC (specialists in ME) a few days ago too...

I got ill at 21, was diagnosed with ME at 22. Iโm 49 now and Iโve never been given any treatment other than painkillers when I was 23. Oh, and one GP printed out a leaflet about the condition to give me when I was asking for help. ๐คท๐ปโโ๏ธ

Worth watching the award-winning short Animation Film (6 mins) that came out last year...

Thanks so much! Really powerful when high profile doctors like you share the right guidelines like this! ๐

Also important to say there are lots of us who recover. After 14 years of illness, I did. There are many reasons to have hope ๐

๐ฅฐyes - hence why I said it fluctuates

