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#ME is a debilitating disease. I know my patients struggle in getting support because the research and evidence base data is scanty - but I hope using the NICE -Myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome: diagnosis and management - helps provide guidance of what you are entitled to on...

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11 ๆก่ฏ„่ฎบ

Naomi Harvey PhD #WearAMask ็š„ๅคดๅƒ
Naomi Harvey PhD #WearAMask1 ๅนดๅ‰

Thank you Dr Nighat Arif ๐Ÿฉต For any doctors or nurses you know who want to know more about it, I wrote this brief 600 word guide sign posting CPD resources on ME/CFS for healthcare professionals

Claim Climbers ็š„ๅคดๅƒ
Claim Climbers1 ๅนดๅ‰

We help Veterans secure their benefits with Medical Evidence and Nexus Letters. Are you, or someone you know, working on a VA Disability claim? We can help!

Jo ็š„ๅคดๅƒ
Jo1 ๅนดๅ‰

Keep talking about it to every Dr you meet. Iโ€™m tired of mentioning what I have to Drs and they either look disinterested, shrug or say they donโ€™t know about it.

Rachel ็š„ๅคดๅƒ
Rachel1 ๅนดๅ‰

Thank you for talking about ME today Dr ๐Ÿ’™ keep shouting about it to colleagues please (I regularly meet GPs who know nothing / recommend graded ex therapy which is proven to harm)

Long Covid Advocacy ๐Ÿ’™ ็š„ๅคดๅƒ
Long Covid Advocacy ๐Ÿ’™1 ๅนดๅ‰

Thank you Dr Arif ๐Ÿ’™ Referring to the NICE guidelines is so important.

K ็š„ๅคดๅƒ
K1 ๅนดๅ‰

Thank you for flagging. Helpful & practical Clinical Care Guide came out from BHC (specialists in ME) a few days ago too...

Lucy ็š„ๅคดๅƒ
Lucy1 ๅนดๅ‰

I got ill at 21, was diagnosed with ME at 22. Iโ€™m 49 now and Iโ€™ve never been given any treatment other than painkillers when I was 23. Oh, and one GP printed out a leaflet about the condition to give me when I was asking for help. ๐Ÿคท๐Ÿปโ€โ™€๏ธ

K ็š„ๅคดๅƒ
K1 ๅนดๅ‰

Worth watching the award-winning short Animation Film (6 mins) that came out last year...

Elisabeth Klaar | Oak Tree Studio ็š„ๅคดๅƒ
Elisabeth Klaar | Oak Tree Studio1 ๅนดๅ‰

Thanks so much! Really powerful when high profile doctors like you share the right guidelines like this! ๐ŸŒŸ

Fiona ็š„ๅคดๅƒ
Fiona1 ๅนดๅ‰

Also important to say there are lots of us who recover. After 14 years of illness, I did. There are many reasons to have hope ๐ŸŒˆ

๐‘ซ๐’“ ๐‘ต๐’Š๐’ˆ๐’‰๐’‚๐’• ๐‘จ๐’“๐’Š๐’‡ ็š„ๅคดๅƒ
๐‘ซ๐’“ ๐‘ต๐’Š๐’ˆ๐’‰๐’‚๐’• ๐‘จ๐’“๐’Š๐’‡1 ๅนดๅ‰

๐Ÿฅฐyes - hence why I said it fluctuates

็›ธๅ…ณ่ง†้ข‘

DR JUDY MIKOVITS CHRONIC FATIGUE SYNDROME AND XMRV Judy Mikovits, PhD: In 2006, I co-founded and developed the first neuro-immune disease Institute to study the cause and treatments of chronic fatigue syndrome. โ€”- Chronic Fatigue Syndrome became epidemic in the 1980s. Dr. Mikovits discovered that 67% of women affected with CFS carried a mouse virus called XMRV-Xenotropic Murine Leukemia Related Virus that appeared in healthy women only 4% of the time. XMRV is also associated with cancers, like prostate, breast, ovarian, leukemia, and multiple myeloma. Many women with XMRV go on to have children with autism. In 2009, Drs. Mikovits and Ruscetti published their explosive findings in the journal Science. But the question remained: How was XMRV getting into people? โ€” Judy Mikovits, PhD: Then in 2011, our research strongly suggested that it entered the human virome through a contaminated blood supply and Vaccines. โ€” Other researchers connected the first outbreaks of chronic fatigue, with an experimental polio vaccine given to doctors and nurses that resulted in the โ€œ1934 Los Angeles County Hospital Epidemic: โ€œEpidemic myalgic encephalomyelitisโ€ That vaccine was cultivated on pulverized mouse brains. Vaccines are commonly grown on a parade of animal tissues. Retroviruses from those dead animals can survive in cell lines and permanently contaminate the vaccines. XMRV is so hazardous that the mere presence of mouse tissue in a laboratory can contaminate other tissues in the same room. Dr Mikovitsโ€™ studies suggested XMRV is present in the MMR and polio vaccines given to American children and Japanese encephalitis vaccines given to military personnel. The dangers of mouse brain derived vaccines are now widely acknowledged. โ€œโ€ฆ mouse brain derived vaccine has been associated with serious allergic and neurologic adverse events.โ€ โ€”American Academy of Pediatrics 2009 Science Paper (Original): (2020 - Original interview video was removed by Youtube) WHAT IS XMRV AND WHY THE CONTROVERSY? Secretary Kennedy

Judy A. Mikovits PhD

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"Most of the people I've seen with #MECFS are so much sicker than my cancer patients." Dr. Fridbjรถrn Sigurdsson, a former medical oncologist now focused on ME/CFS, speaking at the 2025 Invest in ME conference. Research indicates that for many, severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) can cause a lower quality of life, greater functional impairment, and more daily disruption than many cancers or multiple sclerosis. Patients with ME/CFS often report being bedbound, experiencing severe pain, and having little to no available treatment or path to remission. Key Findings on ME/CFS Severity: Quality of Life: Studies have shown that people with ME/CFS have lower quality of life scores than those with various cancers, stroke, or heart attacks. Daily Functioning: Approximately 25% of people with ME/CFS are severely affected, often housebound or bedbound. Comparison to Cancer: While cancer treatments are intense, they often have a defined endpoint, whereas ME/CFS is frequently a long-term, disabling, and ongoing condition with limited treatment options. Impact on Life: The illness can be so debilitating that it leads to a total loss of ability to work, socialize, or perform basic daily tasks like washing or eating. Severe Symptoms: In severe cases, patients may require tube feeding and live in darkness due to light and sound sensitivity. While cancer remains a highly fatal disease, the chronic, unpredictable, and unsupported nature of ME/CFS leads to extreme, long-term impairment that some sufferers and experts describe as sometimes feeling "worse" due to the lack of effective, universally available treatments

๐ŸงกLulu๐ŸŒพ;

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From northern Gaza โœŒ๐Ÿ‡ต๐Ÿ‡ธ... It may be the last message or the last post, and we may or may not meet, but we will remain in the north in Gaza City, if only for the last person. Please pray for us to be steadfast... My friends and dear ones.. I am your friend Mo and this is a new update.. First of all, I want to apologize for not responding to everyone. Everyone knows that we in the north are subjected to a hideous massacre, and it is dangerous for me to go to a place from which I can receive an Internet signal... Believe me, when I see your message, this does not mean that I ignore it. This means that the signal is weak and the Internet is slow. But I see your comments and support with love.. I went to the doctor and had an ultrasound examination to check the tumor and blue marks in my abdomen. The doctor was satisfied with my condition and told me that it was just bruises from the surgery... We are still living in terrifying and difficult times.. The army is still waging a military campaign in the north.. and the tanks are about 1.5 km away from me.. I'm wondering for how long? When will this nightmare end? When will we get out of this hell? Death is no longer terrifying... This life is more terrifying... We still struggle every day to get food. They are still besieging us and using starvation as a weapon against us.. Me, the cats, and my family are all fine. The video below is of my daughter Julia helping me take care of the cats.. there is an idea came to my mind to plant a garden in order to get some vegetables. I bought the seeds from the black market for very ridiculous amounts.. and it will take approximately 3 months for the vegetables to mature.. We don't know if we will stay in the north or if we will live to eat from it. But it is worth the risk... because we miss eating fresh vegetables.. I hope you will support me to get through these difficult times We depend on the black market to get food and food is 100 times its basic price. Your support helps me survive.. and I will be very grateful to you for supporting me.. Even if you cannot support me financially, your moral support and retweets help me a lot, and I appreciate that. Thank you for caring about me, my friends.. I love you all ๐Ÿ’—

help cats

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I do not know who the guy is on the podcast with Raj Shamani, but he is absolutely wrong. There seems to be a section of "health influencers" who fearmonger the public on "dangers of whey protein or protein supplementation." Ammonia production is not a side effect of whey protein metabolism, but is a normal metabolic product of any protein metabolism. Ammonia is natural, generated as a by-product of protein ingestion through the breakdown of amino acids. Of the amino acids, glutamate is the one that has maximal free ammonia generation. In normal healthy persons, excessive ammonia generation is handled by the body and it does not affect brain function. This is done via the "urea cycle" in the liver: In patients with liver disease such as acute liver failure or chronic liver failure, the excess ammonia cannot be cleared out by the weak/failing liver or utilized in the muscles (because of muscle loss in liver patients) and affects brain functioning, leading to a condition called hepatic encephalopathy. This does not happen if you are healthy and taking additional protein. In fact, animal meats are more ammonia generating than plant-based or dairy-based protein and in those chronic liver failure patients with recurrent or persistent ammonia related brain dysfunction, the dietary advise is to limit animal meats and include more or switch to dairy+plant-based protein to keep ammonia generation low. Whey protein and scoops of additional whey protein to target protein requirement is perfectly safe and does not affect brain function or make the person slow like what is discussed in this video. Even advanced cirrhosis patients are supplemented with whey based protein formulations to target additional protein requirements and improve quality of life and immune functions Eg: and I hope we develop a law to deport brain dead misinformation peddling sub-standard "health influencers," like this guy in suit.

TheLiverDocโ„ข

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Today, Chris Packham is testifying at Isleworth Crown Court in support of Cressie, who is currently on trial for climbing on a gantry over the M25. Before entering court today, Chris Packham spoke to the media: โ€œBecause of Cressie, and other Just Stop Oil protesters, I sat sweating on the M25. Was I inconvenienced? Well, thatโ€™s a relative value. I was late to work, but my house was not burning down. I wasnโ€™t drowning in a flood, displaced by famine, or separated from my family as a climate refugee. I was just sat on the M25, a position that I and millions of others find themselves in every single day of the year. Not because of protesters, but because our traffic system is broken, overloaded or stalled due to a breakdown or tragic accident.โ€ โ€œSo I used my โ€˜inconvenienceโ€™ for goodโ€ฆ I imagined the motives of the protesters, why they were taking such a physical risk and further risking imprisonment. I imagined how scared they must have been hanging onto a gantry. I also thought about their message and how in a record breaking heat wave โ€“ with our governmentโ€™s Net Zero policy not fit for purpose โ€“ they should be commended for sounding a vital alarm. I reconciled that my โ€˜inconvenienceโ€™ was entirely justified.โ€ โ€œI am attending court to support Cressie Gethin because I donโ€™t think she is getting a fair trial. I think, along with the UN, that the UKโ€™s protest laws and sentencing of protesters are unjust, draconian, and in conflict with our basic human rights. I think we are witnesses to disproportionae vindictive witch hunts hell-bent on punishing some of the bravest individuals in society just because they are forced to struggle to tell the truth. These trials are shameful, demeaning, and undemocratic. I set a challenge to the judge, the prosecution, and their witnessesโ€ฆ go home and tell someone you know: a son, daughter, nephew or niece who is under 25 what you have done today and then ask them if they are proud of youโ€™โ€.

Just Stop Oil

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