I hate the term Chronic Fatigue Syndrome because “fatigue doesn’t even come close to describing what it is” and it’s “a minor symptom” compared to the others. Natalie Williams explains why CFS is misleading. #MECFS

Full video: Carte Blanche, a South African investigative TV programme aired in 2017 (11 mins) CDC website:

Well, it's more like utter poisoned exhaustion and it is commonly the main issue with PEM for many of us, but not so for everyone & def not the only symptom.

That is a fact I went from 26000 steps a day and 40 tons of lifting and throwing to needing a cane to stand up and watch a nephew play video games for ten minutes

A pretty good interview. I think fatigue IS a major symptom. Esp for myself. If I had one chance to remove one symptom, that would be it,after 40 yrs. I have multiple autoimmune dis, MCAS, allergies, pots, sjorgrens, sweets syndrome (very rare). Id still wish for no fatigue

But then ME is even further away from describing what it is

@TomKindlon She speaks for all sufferers, does she?

💯

Looks like she describes POTS, but hasn't experienced crushing fatigue. POTS probably just is either a heart condition or a vascular issue. Also, she is overweight, which I find bad advertising for ME/CFS. Dafoe was a much better example at his worst.

Absolutely agree