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I hate the term Chronic Fatigue Syndrome because “fatigue doesn’t even come close to describing what it is” and it’s “a minor symptom” compared to the others. Natalie Williams explains why CFS is misleading. #MECFS

Adam

8,207 subscribers

11,122 次观看 • 26 天前 •via X (Twitter)

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BBC Morning Live addresses complaints after Dr Oscar Duke said that Chronic Fatigue Syndrome was “probably the best way to describe” the illness. Feedback from viewers outlines how it trivialises the illness, is just one symptom, and it does not reflect the reality of #MECFS.

BBC Morning Live addresses complaints after Dr Oscar Duke said that Chronic Fatigue Syndrome was “probably the best way to describe” the illness. Feedback from viewers outlines how it trivialises the illness, is just one symptom, and it does not reflect the reality of #MECFS.

Adam

22,158 次观看 • 2 个月前

#ME is a debilitating disease. I know my patients struggle in getting support because the research and evidence base data is scanty - but I hope using the NICE -Myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome: diagnosis and management - helps provide guidance of what you are entitled to on the #NHS ⤵️ #MEAwarenessDay

#ME is a debilitating disease. I know my patients struggle in getting support because the research and evidence base data is scanty - but I hope using the NICE -Myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome: diagnosis and management - helps provide guidance of what you are entitled to on the #NHS ⤵️ #MEAwarenessDay

𝑫𝒓 𝑵𝒊𝒈𝒉𝒂𝒕 𝑨𝒓𝒊𝒇

12,955 次观看 • 1 年前

BBC Morning Live covered the new £4.75m UK government funded #MEcfs DNA study yesterday, which will sequence 6,000 samples as part of the wider DecodeME project. Unfortunately Dr Oscar Duke said Chronic Fatigue Syndrome is “probably the best way to describe” the illness.

BBC Morning Live covered the new £4.75m UK government funded #MEcfs DNA study yesterday, which will sequence 6,000 samples as part of the wider DecodeME project. Unfortunately Dr Oscar Duke said Chronic Fatigue Syndrome is “probably the best way to describe” the illness.

Adam

35,931 次观看 • 2 个月前

This is something that I think everybody needs to listen to. Bear with it because it’s actually very valid. EVERYONE HAS GHETTO FATIGUE! Where is the lie?

This is something that I think everybody needs to listen to. Bear with it because it’s actually very valid. EVERYONE HAS GHETTO FATIGUE! Where is the lie?

AmericanPapaBear™

4,011,878 次观看 • 2 个月前

FATIGUE ON WHEAT: SUBWAY SHOWDOWN 🔥🥪 The only thing fresh in there was the fatigue. Footlong sandwich, mile-long fatigue. Restaurant/fast food fatigue is real…because nobody should have the energy to argue this loud over a sandwich. Inside Subway, a customer and sandwich artist are going full volume like it’s the finals of a yelling competition. “That’s NOT what I ordered!” meets “THEN SAY IT RIGHT!”….meanwhile the bread just sitting there confused. Whole place quiet, watching. This ain’t fast food…it’s fast fatigue. Part 2 in comments…

FATIGUE ON WHEAT: SUBWAY SHOWDOWN 🔥🥪 The only thing fresh in there was the fatigue. Footlong sandwich, mile-long fatigue. Restaurant/fast food fatigue is real…because nobody should have the energy to argue this loud over a sandwich. Inside Subway, a customer and sandwich artist are going full volume like it’s the finals of a yelling competition. “That’s NOT what I ordered!” meets “THEN SAY IT RIGHT!”….meanwhile the bread just sitting there confused. Whole place quiet, watching. This ain’t fast food…it’s fast fatigue. Part 2 in comments…

𝐌𝐑. 𝐖𝐇𝐈𝐓𝐄 ™

34,648 次观看 • 4 个月前

It’s time to confirm RFK, we must get to the bottom of COVID and the vaccines. Unfortunately, many have been suffering from Long Covid Syndrome, leaving people with lingering brain fog, chronic fatigue, and shortness of breath.

It’s time to confirm RFK, we must get to the bottom of COVID and the vaccines. Unfortunately, many have been suffering from Long Covid Syndrome, leaving people with lingering brain fog, chronic fatigue, and shortness of breath.

Kevin Sorbo

47,870 次观看 • 1 年前

New Video: Post Exertional Malaise is the hallmark symptom of #MECFS and is also common in #LongCovid. Video explains the abnormal response to exertion, triggers, symptoms and management.

New Video: Post Exertional Malaise is the hallmark symptom of #MECFS and is also common in #LongCovid. Video explains the abnormal response to exertion, triggers, symptoms and management.

Adam

90,951 次观看 • 3 年前

Do you actually have #mecfs? Lets get into to criteria used to diagnose (dx) #mecfs At the core is 1. fatigue and 2. post-exertion intolerance or post exertional neuroimmune intolerance or PEM RemissionBiome MECFS/LongCovid Patient-Led Science

Do you actually have #mecfs? Lets get into to criteria used to diagnose (dx) #mecfs At the core is 1. fatigue and 2. post-exertion intolerance or post exertional neuroimmune intolerance or PEM RemissionBiome MECFS/LongCovid Patient-Led Science

🕸️Dr.T, PhD

13,375 次观看 • 3 年前

This White Woman perfectly explains what Black Fatigue is: “Black Fatigue is when I can hear you 10 aisles away in Walmart. It’s when you have no idea how to act in public. It’s when you donate to Karmelo Anthony. It’s when you can’t hold your own community accountable.” 🔥🔥🔥

This White Woman perfectly explains what Black Fatigue is: “Black Fatigue is when I can hear you 10 aisles away in Walmart. It’s when you have no idea how to act in public. It’s when you donate to Karmelo Anthony. It’s when you can’t hold your own community accountable.” 🔥🔥🔥

Cillian

3,274,970 次观看 • 1 年前

I fell into a chronic fatigue coma and missed the excitement. 😒 Oh, Dougie! 🥹.. He’s so happy to be home. 🎣💜💙

I fell into a chronic fatigue coma and missed the excitement. 😒 Oh, Dougie! 🥹.. He’s so happy to be home. 🎣💜💙

Emma

19,572 次观看 • 6 个月前

Insomnia (2002) is the Nolan film people underrate because it doesn’t announce itself. The Alaskan daylight becomes a psychological pressure cooker, Pacino’s fatigue is the narrative engine, and the movie quietly studies guilt without puzzle box theatrics.

Insomnia (2002) is the Nolan film people underrate because it doesn’t announce itself. The Alaskan daylight becomes a psychological pressure cooker, Pacino’s fatigue is the narrative engine, and the movie quietly studies guilt without puzzle box theatrics.

cinesthetic.

554,298 次观看 • 7 个月前

DR JUDY MIKOVITS CHRONIC FATIGUE SYNDROME AND XMRV Judy Mikovits, PhD: In 2006, I co-founded and developed the first neuro-immune disease Institute to study the cause and treatments of chronic fatigue syndrome. —- Chronic Fatigue Syndrome became epidemic in the 1980s. Dr. Mikovits discovered that 67% of women affected with CFS carried a mouse virus called XMRV-Xenotropic Murine Leukemia Related Virus that appeared in healthy women only 4% of the time. XMRV is also associated with cancers, like prostate, breast, ovarian, leukemia, and multiple myeloma. Many women with XMRV go on to have children with autism. In 2009, Drs. Mikovits and Ruscetti published their explosive findings in the journal Science. But the question remained: How was XMRV getting into people? — Judy Mikovits, PhD: Then in 2011, our research strongly suggested that it entered the human virome through a contaminated blood supply and Vaccines. — Other researchers connected the first outbreaks of chronic fatigue, with an experimental polio vaccine given to doctors and nurses that resulted in the “1934 Los Angeles County Hospital Epidemic: “Epidemic myalgic encephalomyelitis” That vaccine was cultivated on pulverized mouse brains. Vaccines are commonly grown on a parade of animal tissues. Retroviruses from those dead animals can survive in cell lines and permanently contaminate the vaccines. XMRV is so hazardous that the mere presence of mouse tissue in a laboratory can contaminate other tissues in the same room. Dr Mikovits’ studies suggested XMRV is present in the MMR and polio vaccines given to American children and Japanese encephalitis vaccines given to military personnel. The dangers of mouse brain derived vaccines are now widely acknowledged. “… mouse brain derived vaccine has been associated with serious allergic and neurologic adverse events.” —American Academy of Pediatrics 2009 Science Paper (Original): (2020 - Original interview video was removed by Youtube) WHAT IS XMRV AND WHY THE CONTROVERSY? Secretary Kennedy

DR JUDY MIKOVITS CHRONIC FATIGUE SYNDROME AND XMRV Judy Mikovits, PhD: In 2006, I co-founded and developed the first neuro-immune disease Institute to study the cause and treatments of chronic fatigue syndrome. —- Chronic Fatigue Syndrome became epidemic in the 1980s. Dr. Mikovits discovered that 67% of women affected with CFS carried a mouse virus called XMRV-Xenotropic Murine Leukemia Related Virus that appeared in healthy women only 4% of the time. XMRV is also associated with cancers, like prostate, breast, ovarian, leukemia, and multiple myeloma. Many women with XMRV go on to have children with autism. In 2009, Drs. Mikovits and Ruscetti published their explosive findings in the journal Science. But the question remained: How was XMRV getting into people? — Judy Mikovits, PhD: Then in 2011, our research strongly suggested that it entered the human virome through a contaminated blood supply and Vaccines. — Other researchers connected the first outbreaks of chronic fatigue, with an experimental polio vaccine given to doctors and nurses that resulted in the “1934 Los Angeles County Hospital Epidemic: “Epidemic myalgic encephalomyelitis” That vaccine was cultivated on pulverized mouse brains. Vaccines are commonly grown on a parade of animal tissues. Retroviruses from those dead animals can survive in cell lines and permanently contaminate the vaccines. XMRV is so hazardous that the mere presence of mouse tissue in a laboratory can contaminate other tissues in the same room. Dr Mikovits’ studies suggested XMRV is present in the MMR and polio vaccines given to American children and Japanese encephalitis vaccines given to military personnel. The dangers of mouse brain derived vaccines are now widely acknowledged. “… mouse brain derived vaccine has been associated with serious allergic and neurologic adverse events.” —American Academy of Pediatrics 2009 Science Paper (Original): (2020 - Original interview video was removed by Youtube) WHAT IS XMRV AND WHY THE CONTROVERSY? Secretary Kennedy

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Even using the term “waste” when it comes to needless government spending is misleading — the bureaucrats know exactly what they are doing with the money.

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Down To Health

92,277 次观看 • 4 个月前

"Most of the people I've seen with #MECFS are so much sicker than my cancer patients." Dr. Fridbjörn Sigurdsson, a former medical oncologist now focused on ME/CFS, speaking at the 2025 Invest in ME conference. Research indicates that for many, severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) can cause a lower quality of life, greater functional impairment, and more daily disruption than many cancers or multiple sclerosis. Patients with ME/CFS often report being bedbound, experiencing severe pain, and having little to no available treatment or path to remission. Key Findings on ME/CFS Severity: Quality of Life: Studies have shown that people with ME/CFS have lower quality of life scores than those with various cancers, stroke, or heart attacks. Daily Functioning: Approximately 25% of people with ME/CFS are severely affected, often housebound or bedbound. Comparison to Cancer: While cancer treatments are intense, they often have a defined endpoint, whereas ME/CFS is frequently a long-term, disabling, and ongoing condition with limited treatment options. Impact on Life: The illness can be so debilitating that it leads to a total loss of ability to work, socialize, or perform basic daily tasks like washing or eating. Severe Symptoms: In severe cases, patients may require tube feeding and live in darkness due to light and sound sensitivity. While cancer remains a highly fatal disease, the chronic, unpredictable, and unsupported nature of ME/CFS leads to extreme, long-term impairment that some sufferers and experts describe as sometimes feeling "worse" due to the lack of effective, universally available treatments

"Most of the people I've seen with #MECFS are so much sicker than my cancer patients." Dr. Fridbjörn Sigurdsson, a former medical oncologist now focused on ME/CFS, speaking at the 2025 Invest in ME conference. Research indicates that for many, severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) can cause a lower quality of life, greater functional impairment, and more daily disruption than many cancers or multiple sclerosis. Patients with ME/CFS often report being bedbound, experiencing severe pain, and having little to no available treatment or path to remission. Key Findings on ME/CFS Severity: Quality of Life: Studies have shown that people with ME/CFS have lower quality of life scores than those with various cancers, stroke, or heart attacks. Daily Functioning: Approximately 25% of people with ME/CFS are severely affected, often housebound or bedbound. Comparison to Cancer: While cancer treatments are intense, they often have a defined endpoint, whereas ME/CFS is frequently a long-term, disabling, and ongoing condition with limited treatment options. Impact on Life: The illness can be so debilitating that it leads to a total loss of ability to work, socialize, or perform basic daily tasks like washing or eating. Severe Symptoms: In severe cases, patients may require tube feeding and live in darkness due to light and sound sensitivity. While cancer remains a highly fatal disease, the chronic, unpredictable, and unsupported nature of ME/CFS leads to extreme, long-term impairment that some sufferers and experts describe as sometimes feeling "worse" due to the lack of effective, universally available treatments

🧡Lulu🌾;

16,280 次观看 • 6 个月前