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Most people have never heard of ulcerative colitis until it changes someone’s life. Ulcerative colitis is an autoimmune disease where your immune system attacks your colon, causing bleeding, severe pain, diarrhea, fatigue, and inflammation. And for many Black women, the battle starts long before the diagnosis. 👩🏾🤎 Our pain... show more
26,026 views • 3 months ago •via X (Twitter)
35 Comments

Smh thank her for telling her story health is wealth we got to do better

Absolutely 💯

I don’t understand what I just heard, how did they not call an ambulance when she was sitting on the toilet and pooping blood for days????

My daughter’s colon failed when she was 22 and after two years, we finally gave up and they removed it. Fortunately, they were able to create a pouch out of her small intestine, and she only had to wear the Osteo bag for about nine months. Things aren’t perfect, but she’s bagless

This is terrifying. I am so thankful people like her are brave and share their stories in order to help others. I am so sorry she went through this but from what I get from part 1, she is handling herself with grace and is living her life fully.❤️

Almost the same symptoms. Pooping blood. Severe cramps. No eating. I was omw to work. Walking to the bus stop. I didnt have the energy to make it to the bus stop. Got a hack to hospital. They asked how was i still alive. I barely had any blood. I was diagnosed with Crohns.

I had diverticulitis I was in a flare from October through January My surgeon said if I would have gotten to the hospital when I did I would’ve had ruptured and had to wear a colostomy bag for a year.

My best friend had ulcerative colitis, it was very painful. Then all the steroids damaged her liver so she had 2 liver transplants. I love her.

I've been a chronic pain patient for 23 yrs and one of the first studies I read showed that women and black people are the most under treated for pain in our country and women take much longer to receive diagnosis because we are often treated dismissively by drs.

Thank you, as I log on to my chart to contact my gastroenterologist , OBGYn, hematologist & primary. Bcuz of all my Dx, they have yet to explain my years of blood in my stool & ur story mimics mines, minus the baby. Yet I have all these specialists but they be playin

My son was born with total colonic Hirschsprung’s and has had an ileostomy since he was 8 days old

You don't have to talk about poop at the dinner table, but you should have pulled your mama aside for a private conversation & told her. Who thinks blood in the stool is normal? Lets use common sense & have a sense of sel preservation Google was available when she first noticed.

I am so sorry that this happened to you. Health care is so important and when you get Drs that don’t care or were last in their class, this happens. This was not your fault and I hope that it gets better

Poor thing. I had a different GI disorder where I had to have several organs and quite a bit of my GI tract removed. I’ve talked to people with UC and Chron’s and there are a lot of similarities. Embarrassing discussions. Not being able to eat during a flare or having major dietary restrictions can be really isolating as well. Good for her for speaking up.

Omg. This ooor woman went thru all this only to be damaged more by a robot So sorry. I hope they helping her or she sued

So you’re saying the doctor told you only white Jewish men have ulcerative colitis??? I don’t believe that for one second I’m a nurse and I’ve never heard a doctor tell a patient whether white black Asian Mexican that only white Jewish men have ulcerative colitis

She is so lucky to be alive! In the past 5 months 2 ppl I know have passed from intestine punctures during surgeries. Both went in and a week later gone 😔

Thank you for sharing your story. I, too, eventually diagnosed with UC after only 18 months of symptoms. The pandemic delayed my initial colonoscopy, but was rescheduled relatively soon. I, too , went thru the gambit of meds, unsuccessfully. Eventually a biologic med worked.

That happened to my dad too and he almost went into sepsis too. Dr said he was an inch away from dying because they poked a hole through his intestine during the colonoscopy.

I’m so sorry. I NEVER take my doctors word. We ALL know our bodies better than any doctor. ALWAYS get a second opinion.

I was diagnosed with UC at the age of 22 after the birth of my son. I was afraid to seek medical attention, but the symptoms worsened. Meds didn’t stop my flare ups so I ultimately had to have my colon and rectum removed. Had an ostomy for 6 mths. I’m now living with a J pouch.

Poor girl! Shows how ignorant docs can be.

Seeing this video right after learning about a Philly sidecar

I legit don’t think most physicians care. The “white Jewish men” is legit retardedly though. But aside from that. Can relate, my family and their unwillingness to ever discuss heredity issues. Fun. Poor lady.

😔🙏🏼

Holy crow this poor women she was just a kid going through that! She’s a hero for spreading awareness!

Everyone should be asking how you ended up with that awful weave. Stop the drama and deliver a serious narrative - this is a serious medical story. You’re not auditioning.

That is awful. Do we have part two?

Get to the part where you sued and won millions for malpractice! The medical robot did what?!!! My goodness 😩😳

I have severe Crohn's disease 40+ surgeries. I had a colectomy in 2019...permanent ileostomy. It saved my life!

My heart goes out to this woman. I pray that God would heal her.

White Jewish men? My Native American brown ex gf had it too

WOW 🙏

Oh dear sis 🫂

Wow.
