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New Video: Very Severe #MECFS is a debilitating condition causing profound suffering and life threatening symptoms. They are bedridden and dependent on care. Most doctors have had no training; leading to misdiagnosis, Inappropriate management and medical neglect.

Adam

8,169 subscribers

134,022 views • 2 years ago •via X (Twitter)

Health & Wellness News & Politics Education #MECFS

Anya Rossi• Live Now

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12 Comments

Adam2 years ago

Some people with Very Severe #MECFS may not be able to ingest food and need to be tube fed. This case study highlights 5 patients with where the delay of tube feeding led to life threatening malnutrition.

Adam2 years ago

There have been two recent high profile cases of patients being refused nutritional support in the UK.

Adam2 years ago

And there is an inquest into the death of a person with #MECFS due to medical neglect that is currently ongoing.

Adam2 years ago

The NICE Guideline has more info about Severe and Very Severe ME/CFS.

Adam2 years ago

Video (2mins 20) also on YouTube. Very Severe #MECFS is a debilitating condition causing profound suffering and life-threatening symptoms. Most doctors have had no training; leading to misdiagnosis, Inappropriate management and medical neglect.

The Liberation Project1 year ago

𝐀 𝐇𝐞𝐚𝐥𝐭𝐡 𝐈𝐧𝐬𝐮𝐫𝐚𝐧𝐜𝐞 𝐂𝐄𝐎 𝐢𝐬 𝐍𝐨𝐭 𝐓𝐡𝐞 ‘𝑾𝒐𝒓𝒌𝒊𝒏𝒈 𝑪𝒍𝒂𝒔𝒔 𝑯𝒆𝒓𝒐’ Americans of all political affiliation suddenly woke up realize they agree that their healthcare system is inherently cruel and produces unnecessary misery. ★ NEW ARTICLE ⬇️

Tracey Burgess2 years ago

Thank you Adam. It's the weirdest & most horrifying situation, for people 'living' with severe/very severe ME/CFS, that they're ignored by most medical professionals & most of society. The truth about their woeful neglect, will become known but it's so painfully slow. 💙

Adam2 years ago

💯 it's absolutely appalling.

Carole Bruce2 years ago

Thank you Adam. I hope this is seen by millions and action into research, treatment options and real help follows.

Adam2 years ago

Something really needs to change.

Lizzy H2 years ago

Brilliant video💙 thank you. My heart breaks seeing photos of Merryn, I really miss her. I wish everyone saw this and it was shown in parliament and Medical education settings.

Adam2 years ago

Thanks Lizzy. Yes It's terribly sad 💔 I really hope this helps educate even just a few HPs.

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