New Video: Very Severe #MECFS is a debilitating condition causing profound suffering and life threatening symptoms. They are bedridden and dependent on care. Most doctors have had no training; leading to misdiagnosis, Inappropriate management and medical neglect.

Some people with Very Severe #MECFS may not be able to ingest food and need to be tube fed. This case study highlights 5 patients with where the delay of tube feeding led to life threatening malnutrition.

There have been two recent high profile cases of patients being refused nutritional support in the UK.

And there is an inquest into the death of a person with #MECFS due to medical neglect that is currently ongoing.

The NICE Guideline has more info about Severe and Very Severe ME/CFS.

Video (2mins 20) also on YouTube. Very Severe #MECFS is a debilitating condition causing profound suffering and life-threatening symptoms. Most doctors have had no training; leading to misdiagnosis, Inappropriate management and medical neglect.

𝐀 𝐇𝐞𝐚𝐥𝐭𝐡 𝐈𝐧𝐬𝐮𝐫𝐚𝐧𝐜𝐞 𝐂𝐄𝐎 𝐢𝐬 𝐍𝐨𝐭 𝐓𝐡𝐞 ‘𝑾𝒐𝒓𝒌𝒊𝒏𝒈 𝑪𝒍𝒂𝒔𝒔 𝑯𝒆𝒓𝒐’ Americans of all political affiliation suddenly woke up realize they agree that their healthcare system is inherently cruel and produces unnecessary misery. ★ NEW ARTICLE ⬇️

Thank you Adam. It's the weirdest & most horrifying situation, for people 'living' with severe/very severe ME/CFS, that they're ignored by most medical professionals & most of society. The truth about their woeful neglect, will become known but it's so painfully slow. 💙

💯 it's absolutely appalling.

Thank you Adam. I hope this is seen by millions and action into research, treatment options and real help follows.

Something really needs to change.

Brilliant video💙 thank you. My heart breaks seeing photos of Merryn, I really miss her. I wish everyone saw this and it was shown in parliament and Medical education settings.

Thanks Lizzy. Yes It's terribly sad 💔 I really hope this helps educate even just a few HPs.