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New Video: Very Severe #MECFS is a debilitating condition causing profound suffering and life threatening symptoms. They are bedridden and dependent on care. Most doctors have had no training; leading to misdiagnosis, Inappropriate management and medical neglect.

Adam

8,169 subscribers

134,022 次观看 • 2 年前 •via X (Twitter)

健康养生新闻政治教育 #MECFS

Anya Rossi• Live Now

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12 条评论

Adam 的头像

Adam2 年前

Some people with Very Severe #MECFS may not be able to ingest food and need to be tube fed. This case study highlights 5 patients with where the delay of tube feeding led to life threatening malnutrition.

Adam 的头像

Adam2 年前

There have been two recent high profile cases of patients being refused nutritional support in the UK.

Adam 的头像

Adam2 年前

And there is an inquest into the death of a person with #MECFS due to medical neglect that is currently ongoing.

Adam 的头像

Adam2 年前

The NICE Guideline has more info about Severe and Very Severe ME/CFS.

Adam 的头像

Adam2 年前

Video (2mins 20) also on YouTube. Very Severe #MECFS is a debilitating condition causing profound suffering and life-threatening symptoms. Most doctors have had no training; leading to misdiagnosis, Inappropriate management and medical neglect.

The Liberation Project 的头像

The Liberation Project1 年前

𝐀 𝐇𝐞𝐚𝐥𝐭𝐡 𝐈𝐧𝐬𝐮𝐫𝐚𝐧𝐜𝐞 𝐂𝐄𝐎 𝐢𝐬 𝐍𝐨𝐭 𝐓𝐡𝐞 ‘𝑾𝒐𝒓𝒌𝒊𝒏𝒈 𝑪𝒍𝒂𝒔𝒔 𝑯𝒆𝒓𝒐’ Americans of all political affiliation suddenly woke up realize they agree that their healthcare system is inherently cruel and produces unnecessary misery. ★ NEW ARTICLE ⬇️

Tracey Burgess 的头像

Tracey Burgess2 年前

Thank you Adam. It's the weirdest & most horrifying situation, for people 'living' with severe/very severe ME/CFS, that they're ignored by most medical professionals & most of society. The truth about their woeful neglect, will become known but it's so painfully slow. 💙

Adam 的头像

Adam2 年前

💯 it's absolutely appalling.

Carole Bruce 的头像

Carole Bruce2 年前

Thank you Adam. I hope this is seen by millions and action into research, treatment options and real help follows.

Adam 的头像

Adam2 年前

Something really needs to change.

Lizzy H 的头像

Lizzy H2 年前

Brilliant video💙 thank you. My heart breaks seeing photos of Merryn, I really miss her. I wish everyone saw this and it was shown in parliament and Medical education settings.

Adam 的头像

Adam2 年前

Thanks Lizzy. Yes It's terribly sad 💔 I really hope this helps educate even just a few HPs.

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Highlights from today's BBC Breakfast Interview with Binita Kane and Sarah Boothby (sarah) about Severe #MECFS and doctors who have had no training not understanding/listening when they see severly ill patients with #MECFS

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