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NIH Director Dr. Jay Bhattacharya says the NIH has found a cure for sickle cell anemia. “Some NIH investments have a track record of success.” “For example, just this year, decades-long work of NIH-supported researchers culminated in not just one, but two new gene therapies to cure sickle cell... show more

MAHA Action

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23,237 views • 5 months ago •via X (Twitter)

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NIH Director Dr. Jay Bhattacharya revealed we have a cure for sickle cell anemia. But it costs $3 million. “Did you know that we have a cure for sickle cell anemia?” “It’s NIH-funded research that did this.” “It costs $3 million for treatment.” “If it cost $3,000, there’d be no more sickle cell anemia.” “It’s a single gene problem.” “We’ve invested in cutting-edge science… but we haven’t invested in the things that actually make those huge advances available to the people of the world.” MAHA Institute

NIH Director Dr. Jay Bhattacharya revealed we have a cure for sickle cell anemia. But it costs $3 million. “Did you know that we have a cure for sickle cell anemia?” “It’s NIH-funded research that did this.” “It costs $3 million for treatment.” “If it cost $3,000, there’d be no more sickle cell anemia.” “It’s a single gene problem.” “We’ve invested in cutting-edge science… but we haven’t invested in the things that actually make those huge advances available to the people of the world.” MAHA Institute

MAHA Action

63,024 views • 5 months ago

Sebastien Beauzile is the first person in New York to be cured of sickle cell anemia. For too long, research and treatment for sickle cell disease, which disproportionately affects Black people, have taken a back seat. It's my honor to support Cohen Children’s Medical Center with a $100K donation to invest in their cutting-edge sickle cell treatment and research.

Sebastien Beauzile is the first person in New York to be cured of sickle cell anemia. For too long, research and treatment for sickle cell disease, which disproportionately affects Black people, have taken a back seat. It's my honor to support Cohen Children’s Medical Center with a $100K donation to invest in their cutting-edge sickle cell treatment and research.

Ben Crump

60,631 views • 1 year ago

Sickle Cell: We Are Glad To Have The Bone Marrow Transplant Available In Nigeria We are the first NGO to initiate a collective partnership to establish this bone marrow transplant centre, which is the cure for sickle cell. CEO/National Director, Sickle Cell Foundation Nigeria, Dr Annette Ofunne Akinsete Full Interview:

Sickle Cell: We Are Glad To Have The Bone Marrow Transplant Available In Nigeria We are the first NGO to initiate a collective partnership to establish this bone marrow transplant centre, which is the cure for sickle cell. CEO/National Director, Sickle Cell Foundation Nigeria, Dr Annette Ofunne Akinsete Full Interview:

ARISE NEWS

11,967 views • 1 year ago

“Just the idea that 2-meter-long DNA can be wrapped up in a tiny cell is just mind-boggling” – Dr. Peter Park on how NIH-supported research led to key discoveries about DNA organization’s impact on health & disease. Watch the full video:

“Just the idea that 2-meter-long DNA can be wrapped up in a tiny cell is just mind-boggling” – Dr. Peter Park on how NIH-supported research led to key discoveries about DNA organization’s impact on health & disease. Watch the full video:

NIH

17,816 views • 1 year ago

It took me years to finally be able to share publicly that I was born with Sickle Cell. Over the last 2 years I have spoken about this disease during my performances but I realise that more needs to be done. Every year over 100,000 children are born with Sickle Cell in Nigeria alone. Sickle Cell has no cure, it is highly under researched because it largely affects West Africans. This weekend was very emotional for me, met children living with the disease, spoke with parents who are finding it hard to cope amidst the economic crisis in the country. Thank you to Sickle Cell Advocacy & Mgt Initiative and @sicklecellfoundationng for the work you are doing. I am inspired by the touching stories and encounters I had last weekend and I want to ensure that all the independent organisations doing the vital work, outreach and research needed to fight Sickle Cell receive the resources and support that they desperately need. To my Champions, if I can do it, you can do it too. ❤️

It took me years to finally be able to share publicly that I was born with Sickle Cell. Over the last 2 years I have spoken about this disease during my performances but I realise that more needs to be done. Every year over 100,000 children are born with Sickle Cell in Nigeria alone. Sickle Cell has no cure, it is highly under researched because it largely affects West Africans. This weekend was very emotional for me, met children living with the disease, spoke with parents who are finding it hard to cope amidst the economic crisis in the country. Thank you to Sickle Cell Advocacy & Mgt Initiative and @sicklecellfoundationng for the work you are doing. I am inspired by the touching stories and encounters I had last weekend and I want to ensure that all the independent organisations doing the vital work, outreach and research needed to fight Sickle Cell receive the resources and support that they desperately need. To my Champions, if I can do it, you can do it too. ❤️

BIG FISH

331,025 views • 2 years ago

NIH Director Dr. Jay Bhattacharya confirms the NIH will not fund research using aborted fetal cells in any capacity moving forward. “There are better alternatives available that are not ethically conflicted.” “And so we took this action because we wanted to make sure that the fruits of NIH research is morally acceptable to the entire American population.” Jay Bhattacharya, MD, PhD NIH

NIH Director Dr. Jay Bhattacharya confirms the NIH will not fund research using aborted fetal cells in any capacity moving forward. “There are better alternatives available that are not ethically conflicted.” “And so we took this action because we wanted to make sure that the fruits of NIH research is morally acceptable to the entire American population.” Jay Bhattacharya, MD, PhD NIH

Children’s Health Defense

31,400 views • 5 months ago

#WATCH | Chandrapur, Maharashtra: On National Sickle Cell Elimination Mission 2047 program, Director of ICMR- CRHCM, Nagpur Dr Manisha Madkaikar says, "The National Sickle Cell Elimination Mission has given the guidelines. One is universal screening. In areas with a very high prevalence of sickle cell disease, the entire population under 40 is screened. Currently, under this mission, it is planned that nearly 7 crore individuals will be screened for sickle cell disease... The other is newborn screening. As soon as a newborn is born, we can test the newborn to determine whether he has sickle cell disease. Newborn screening is important because if you diagnose newborns early, you can give them effective treatment... In antenatal screening, the first visit is an ideal time to screen a pregnant woman. If she is found to be a carrier or affected, we can test her partner. If both are carriers for sickle cell disease, we can counsel them about testing the fetus before 20 weeks' gestational age. If the fetus is affected, the couple can consider options regarding sickle cell disease and the decision about pregnancy termination is left solely to the patients and their family."

#WATCH | Chandrapur, Maharashtra: On National Sickle Cell Elimination Mission 2047 program, Director of ICMR- CRHCM, Nagpur Dr Manisha Madkaikar says, "The National Sickle Cell Elimination Mission has given the guidelines. One is universal screening. In areas with a very high prevalence of sickle cell disease, the entire population under 40 is screened. Currently, under this mission, it is planned that nearly 7 crore individuals will be screened for sickle cell disease... The other is newborn screening. As soon as a newborn is born, we can test the newborn to determine whether he has sickle cell disease. Newborn screening is important because if you diagnose newborns early, you can give them effective treatment... In antenatal screening, the first visit is an ideal time to screen a pregnant woman. If she is found to be a carrier or affected, we can test her partner. If both are carriers for sickle cell disease, we can counsel them about testing the fetus before 20 weeks' gestational age. If the fetus is affected, the couple can consider options regarding sickle cell disease and the decision about pregnancy termination is left solely to the patients and their family."

ANI

10,749 views • 1 year ago

. Jay Bhattacharya joins this NEW episode of Real Talk to discuss COVID, NIH reform, DEI in science, vaccine mandates, and restoring medical innovation. | NIHDirector_Jay 00:00 - Dr. Jay Bhattacharya on COVID, Censorship, and the NIH 01:57 - Why Dr. Jay Spoke Out During COVID 04:07 - Why Public Health Cannot Just “Move On” 06:50 - Can Americans Trust the NIH Again? 10:00 - How Do You Reform a $50 Billion Institution? 11:05 - How Politics Entered the NIH 15:14 - Is the NIH Banning Words and Blocking Research? 17:30 - Is the NIH Funding Safe Science Instead of Breakthrough Ideas? 22:10 - How Dr. Jay Is Changing NIH Grant Funding 26:16 - Is Peer Review Broken? 30:08 - Who Gets to Decide What Is True in Science? 33:45 - Why Replication Matters 35:31 - How the NIH Plans to Fix the Replication Crisis 39:07 - Is America Still Leading Biomedical Innovation? 42:15 - Cancer Research, Immunotherapy, and Medical Breakthroughs 44:01 - Gene Editing, Sickle Cell, and the Future of Cures 47:12 - How Should Parents Think About Vaccines After COVID? 50:04 - Why Do We Still Vaccinate for Rare Diseases?

. Jay Bhattacharya joins this NEW episode of Real Talk to discuss COVID, NIH reform, DEI in science, vaccine mandates, and restoring medical innovation. | NIHDirector_Jay 00:00 - Dr. Jay Bhattacharya on COVID, Censorship, and the NIH 01:57 - Why Dr. Jay Spoke Out During COVID 04:07 - Why Public Health Cannot Just “Move On” 06:50 - Can Americans Trust the NIH Again? 10:00 - How Do You Reform a $50 Billion Institution? 11:05 - How Politics Entered the NIH 15:14 - Is the NIH Banning Words and Blocking Research? 17:30 - Is the NIH Funding Safe Science Instead of Breakthrough Ideas? 22:10 - How Dr. Jay Is Changing NIH Grant Funding 26:16 - Is Peer Review Broken? 30:08 - Who Gets to Decide What Is True in Science? 33:45 - Why Replication Matters 35:31 - How the NIH Plans to Fix the Replication Crisis 39:07 - Is America Still Leading Biomedical Innovation? 42:15 - Cancer Research, Immunotherapy, and Medical Breakthroughs 44:01 - Gene Editing, Sickle Cell, and the Future of Cures 47:12 - How Should Parents Think About Vaccines After COVID? 50:04 - Why Do We Still Vaccinate for Rare Diseases?

Marissa Streit

11,305 views • 14 days ago

Congratulations to Stuart Orkin and Swee Lay Thein, winners of the 2026 Breakthrough Prize in Life Sciences, for elucidating the mechanism driving the switch from fetal to adult hemoglobin and validating it as a therapeutic target for sickle-cell disease and beta-thalassemia. Boston Children's NIH

Congratulations to Stuart Orkin and Swee Lay Thein, winners of the 2026 Breakthrough Prize in Life Sciences, for elucidating the mechanism driving the switch from fetal to adult hemoglobin and validating it as a therapeutic target for sickle-cell disease and beta-thalassemia. Boston Children's NIH

Breakthrough

14,713 views • 3 months ago

I HAVE BEEN IN PAIN FOR ALMOST 27 YEARS. SICKLE CELL HAS BEEN ALL I HAVE KNOWN. THE EXCRUCIATING PAIN AND NOT BEING ABLE TO DO ANYTHING TO STOP IT. SICKLE CELL FEELS LIKE A SICK GAME YOU DO NOT WANT TO BE A PART OF. NO CONTROL. PAIN FOR 27 YEARS, I AM REAL TO THIS🩸

I HAVE BEEN IN PAIN FOR ALMOST 27 YEARS. SICKLE CELL HAS BEEN ALL I HAVE KNOWN. THE EXCRUCIATING PAIN AND NOT BEING ABLE TO DO ANYTHING TO STOP IT. SICKLE CELL FEELS LIKE A SICK GAME YOU DO NOT WANT TO BE A PART OF. NO CONTROL. PAIN FOR 27 YEARS, I AM REAL TO THIS🩸

MAMI

13,988 views • 1 year ago

RFK Jr. says he is working with insurance companies to start covering treatment that can cure sickle cell. “I spent the day with a young woman who was in agony because of sickle cell… and she now has a full life because she received this treatment.” “If we can give that to people that’s almost providential power.” “I was in South Carolina inking the final documents on a deal that we've put together… to make this particular cell and gene therapy available to every person in the state who has sickle cell with it being fully paid for.” “We're negotiating now with 38 other states and by the end of next year we hope to have this available to every American.” “It's saving the insurance companies money… if they look at the total cost over the lifetime of that child it's an enormous saving because even though it's a very expensive drug, it's a one time treatment.”

RFK Jr. says he is working with insurance companies to start covering treatment that can cure sickle cell. “I spent the day with a young woman who was in agony because of sickle cell… and she now has a full life because she received this treatment.” “If we can give that to people that’s almost providential power.” “I was in South Carolina inking the final documents on a deal that we've put together… to make this particular cell and gene therapy available to every person in the state who has sickle cell with it being fully paid for.” “We're negotiating now with 38 other states and by the end of next year we hope to have this available to every American.” “It's saving the insurance companies money… if they look at the total cost over the lifetime of that child it's an enormous saving because even though it's a very expensive drug, it's a one time treatment.”

End Tribalism in Politics

35,435 views • 1 year ago

Unbelievable. RFK Jr says corruption at NIH is the SOLE REASON there isn’t a cure for Alzheimer’s: “For 20 years, because of utter corruption and fraud, we were directing Alzheimer’s research to one hypothesis, and any other hypothesis was shut down. We should have the cure for Alzheimer’s today. We don’t have it PURELY because of corruption at NIH. And we are going to have it quickly.”

Unbelievable. RFK Jr says corruption at NIH is the SOLE REASON there isn’t a cure for Alzheimer’s: “For 20 years, because of utter corruption and fraud, we were directing Alzheimer’s research to one hypothesis, and any other hypothesis was shut down. We should have the cure for Alzheimer’s today. We don’t have it PURELY because of corruption at NIH. And we are going to have it quickly.”

Patri0tsareinContr0l

1,270,066 views • 1 year ago

NIH Director Dr. Jay Bhattacharya says Covid vaccine-injured patients were gaslit. Now, he says, the NIH is working to help them. “You have patients with conditions that are poorly understood, and the medical system will gaslight them.” “They tell you it's a psychological issue rather than a physical issue.” “It's going to make you think that you're crazy.” “We have investments in this [Covid vaccine injuries], and we’re going to have more investments in it starting this year.” Jay Bhattacharya, MD, PhD Jay Bhattacharya

NIH Director Dr. Jay Bhattacharya says Covid vaccine-injured patients were gaslit. Now, he says, the NIH is working to help them. “You have patients with conditions that are poorly understood, and the medical system will gaslight them.” “They tell you it's a psychological issue rather than a physical issue.” “It's going to make you think that you're crazy.” “We have investments in this [Covid vaccine injuries], and we’re going to have more investments in it starting this year.” Jay Bhattacharya, MD, PhD Jay Bhattacharya

Jan Jekielek

93,417 views • 5 months ago

Dr. Patrick Soon-Shiong unearths a 20 year old report in front of NIH Director Dr. Jay Bhattacharya Scientific leaders identified the most important molecule to stimulate the production of T Cells and NK Cells, which are “the most important cell in your body to kill cancer”. SOON-SHIONG - “Thought leaders of the country have known for close to 20 years”.

Dr. Patrick Soon-Shiong unearths a 20 year old report in front of NIH Director Dr. Jay Bhattacharya Scientific leaders identified the most important molecule to stimulate the production of T Cells and NK Cells, which are “the most important cell in your body to kill cancer”. SOON-SHIONG - “Thought leaders of the country have known for close to 20 years”.

Humanspective

261,090 views • 4 months ago

23-Year-Old Daniel Cressy Became One Of Fewer Than 100 People In The World To Receive Gene Therapy For Sickle Cell Disease, And Is Now Returning Home With Hope For A Healthier Future. This Breakthrough Is Bringing New Hope To Families Affected By The Disease! 🙌🏿

23-Year-Old Daniel Cressy Became One Of Fewer Than 100 People In The World To Receive Gene Therapy For Sickle Cell Disease, And Is Now Returning Home With Hope For A Healthier Future. This Breakthrough Is Bringing New Hope To Families Affected By The Disease! 🙌🏿

Raphousetv (RHTV)

26,492 views • 2 months ago

Too many Americans have lost loved ones to cancer, Alzheimer’s, and infectious disease. Researchers at SUNY - The State University of New York and The City University of New York rely on funding from NIH to find a cure, but Trump's cuts could put those efforts at risk. We just won a court order ensuring this research can continue.

Too many Americans have lost loved ones to cancer, Alzheimer’s, and infectious disease. Researchers at SUNY - The State University of New York and The City University of New York rely on funding from NIH to find a cure, but Trump's cuts could put those efforts at risk. We just won a court order ensuring this research can continue.

NY AG James

312,472 views • 1 year ago

Dr. Jay Bhattacharya just pledged to support dissident scientists in his Senate confirmation hearing: “Dissent is the very essence of science.” “23% of Americans have not much or no confidence at all … in scientists to act in the public’s best interests.” “I have five concrete goals if confirmed as Director of the NIH.” “First, NIH research should focus on research that solves the American chronic disease crisis.” “Life expectancy flatlined between 2012 and 2019, plummeted during the pandemic, and still has not bounced back.” “The chronic disease crisis is severe, with hundreds of millions of Americans—children and adults—suffering from obesity, heart disease, cancer and more.” “Second, NIH-supported science should be replicable, reproducible, and generalizable.” “Unfortunately, much bought modern biomedical science fails this basic test.” “Third, if confirmed, I will establish a culture of respect for free speech in science and scientific dissent at the NIH.” “Over the last few years, top NIH officials oversaw a culture of cover-up, obfuscation, and a lack of tolerance for ideas that differ from theirs.” “Fourth, the NIH must recommit to its mission to fund the most innovative biomedical research agenda possible to improve American health.” “Fifth, the NIH must embrace, and vigorously regulate, risky research that has the possibility of causing a pandemic.” “If confirmed, I'll carry out President Trump's agenda of making the public science institutions of this country worthy of trust and serve to Make America Healthy Again.” Jay Bhattacharya

Dr. Jay Bhattacharya just pledged to support dissident scientists in his Senate confirmation hearing: “Dissent is the very essence of science.” “23% of Americans have not much or no confidence at all … in scientists to act in the public’s best interests.” “I have five concrete goals if confirmed as Director of the NIH.” “First, NIH research should focus on research that solves the American chronic disease crisis.” “Life expectancy flatlined between 2012 and 2019, plummeted during the pandemic, and still has not bounced back.” “The chronic disease crisis is severe, with hundreds of millions of Americans—children and adults—suffering from obesity, heart disease, cancer and more.” “Second, NIH-supported science should be replicable, reproducible, and generalizable.” “Unfortunately, much bought modern biomedical science fails this basic test.” “Third, if confirmed, I will establish a culture of respect for free speech in science and scientific dissent at the NIH.” “Over the last few years, top NIH officials oversaw a culture of cover-up, obfuscation, and a lack of tolerance for ideas that differ from theirs.” “Fourth, the NIH must recommit to its mission to fund the most innovative biomedical research agenda possible to improve American health.” “Fifth, the NIH must embrace, and vigorously regulate, risky research that has the possibility of causing a pandemic.” “If confirmed, I'll carry out President Trump's agenda of making the public science institutions of this country worthy of trust and serve to Make America Healthy Again.” Jay Bhattacharya

Holden Culotta

203,693 views • 1 year ago

23-yo Daniel Cressy became one of fewer than 100 people in the world to receive gene therapy for sickle cell disease, and is now heading home with hope for a healthier life. This innovation is bringing new hope to families impacted by this disease! 🙌🏿

23-yo Daniel Cressy became one of fewer than 100 people in the world to receive gene therapy for sickle cell disease, and is now heading home with hope for a healthier life. This innovation is bringing new hope to families impacted by this disease! 🙌🏿

Ben Crump

109,810 views • 3 months ago