We're launching our Push for Progress campaign to accelerate ALS research, expand treatment access, & secure $1BN in federal funding over 3 years. ALS is at a tipping point CLOSE to new treatments, but thousands will lose access unless we TAKE ACTION @

Good speech by Eric Dane in this video but easy to see how his voice has already been affected. There is world-wide research continuing with networking occurring which hopefully will continue to accelerate progress toward slowing the debilitation and goal of a cure. @bsw5020

Yeah things still move too slow for pALS. 7 years after my big brother was diagnosed and there has been progress made, thanks the Brian and iamALS. I just wish it moved as fast as ALS does so that some people can continue to live a dignified life. Godspeed

Seeing this now hurts 💔💔 may he rest in peace

I’m assuming he has Bulbar-onset as do I. I can still walk, but no one can understand me when I talk. I was diagnosed in May ‘24 and my doc said she thinks I’ll be hospice-eligible early next year. It’s ok/not ok. Living like this is unbelievably hard My husband is a saint.

anyone researching ivermectin and fenbendazole?

Please do not say “tipping point Close”. You and others have said that for years. Decades. It’s bullshit. Please don’t over promise. Not Fair to pals cals. Even too Drs admit it’s still an enigma. Ethics are important even with fatal diseases. #als #mnd

😢😢😢😖😖😫😢🙏🙏😓😓

Keep up the good work!

Put your research money into rebooting the immune system…..

I AM ALS keeps asking ALS families, caregivers, and donors for money in the name of “progress,” “access,” and “a cure.” But the latest IRS Form 990 listed on their own official website raises a serious question every ALS patient, caregiver, and donor should be asking. In 2024, I AM ALS reported $4,027,369 in contributions and grants, $4,117,942 in total revenue, and $2,566,630 in total expenses. The same filing reports $1,732,743 in “salaries, other compensation, employee benefits” — while reporting only $5,255 in “grants and similar amounts paid.” Read that again: over $4 million came in, over $1.7 million was reported for salaries/compensation/benefits, and only $5,255 was reported as grants or similar amounts paid. So here is the question every ALS patient, caregiver, and donor should be asking: How much money went directly to treatment research, clinical trials, drug development, or cure-focused grants? Awareness does not stop ALS. Slogans do not stop ALS. Campaigns do not stop ALS. ALS patients deserve transparent numbers, measurable outcomes, and real money moving directly toward treatments and a cure. If the mission is truly to end ALS, then show exactly how the money is being used to get there.

@grok What is ALS?

Has any therapy (other than Nurown) had an objective change in pertinent biomarkers?